nzord.org.nz
NZORD - Rare disease support group directory
http://www.nzord.org.nz/support-groups
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Rare disease support group directory. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.
worldalbinism.org
Albinism Associations from around the world | World Albinism Alliance
https://worldalbinism.org/2015/01/12/albinism-associations-from-around-the-world
Albinism Associations from around the world. January 12, 2015. The following is a list which has been compiled from various sources. If you know any additional organisations, please let us know! If there are any errors in the following list, please also let us know! Shari Parker president@worldalbinism.com. Country in which it works? 4As-Associação de Apoio de Albinos de Angola. Https:/ www.facebook.com/pages/4As-Associa%C3%A7%C3%A3o-de-Apoio-de-Albinos-de-Angola/513234915423327? East Africa / Kenya.
nzordgroups.org.nz
NZORD (old) - Rare disease support group directory
http://www.nzordgroups.org.nz/support-groups
Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.
worldalbinism.org
doctorshari | World Albinism Alliance
https://worldalbinism.org/author/doctorshari
All posts by doctorshari. World Albinism Alliance and International Albinism Awareness Day June 13th 2015. June 13, 2015. World Albinism Alliance and International Albinism Awareness Day June 13. The World Albinism Alliance. WAA) was formed in 2011 to bring together Albinism Societies from around the world. The WAA was established in 2012, founded on discussions dating back almost two decades. The WAA has over 40 active participants with representation from all of the world’s continents. Has focused on e...
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