ingarrettsmemory.blogspot.com
Garrett's House: Testing for EB
http://ingarrettsmemory.blogspot.com/2015/05/testing-for-eb.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. May 5, 2015. Skin Biopsy for EB. Samples of the skin or a blister is taken by a trained doctor. The skin samples must be processed for specific studies, immunofluorescence antigen (IFA) mapping and transmission electron microscopy (EM). Only two labs in the US can process EB biopies:. 1) Beutner Labs, Inc. Buffalo, NY 14215. Http:/ www.beutnerlabs.com/contact/. A great reso...
ingarrettsmemory.blogspot.com
Garrett's House: blended diets
http://ingarrettsmemory.blogspot.com/2015/01/blended-diets.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. January 22, 2015. Instead of the pre-made commercial formula, we choose to give Joey a blended diet. A blended diet is when you take real food and blended up to the consistency of a smoothie. We then feed like a set volume at every meal. Here is a basic guide I came up with that would be easy for someone new to the blended diet world to follow. 560 calories 44g protein).
ingarrettsmemory.blogspot.com
Garrett's House: 4/20/14 - 4/27/14
http://ingarrettsmemory.blogspot.com/2014_04_20_archive.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. April 23, 2014. Rest in Peace Hannah. You can read here blog here: A Cure for Hannah. You can also watch the BEAUTIFUL slideshow done by a friend of her family here! Rest in peace Hannah, you fought a brave battle. You will NOT be forgotten. Labels: hannah york; bone marrow transplant; rdeb. Subscribe to: Posts (Atom). The largest EB research foundation. The Garden of Angels.
epidermolysis-bullosa.pl
Linki – Epidermolysis Bullosa
http://epidermolysis-bullosa.pl/linki
Opieka nad dzieckiem z EB. Lekarze w leczeniu EB. Stowarzyszenie Debra Polska Kruchy Dotyk. Theme: Accelerate by ThemeGrill. Opieka nad dzieckiem z EB. Lekarze w leczeniu EB.
biancasnewadventures.com
Bianca's Adventures: October 2013
http://www.biancasnewadventures.com/2013_10_01_archive.html
The dance of life must go on, no matter how much the tune of the music changes.". Monday, October 28, 2013. Little Things Just Little Things. It's EB Awareness Week! In the name of creating awareness about the condition my beautiful daughter deals with on a daily basis I'm just doing a real quick blog regarding a few items around the house that buys us more quality time. Some might seem so minuet while others are crucial to our every day lives.okay ready.set.here we go. Why It's Funny: I'm not sure about...
sleepingangel.com
Untitled Document
http://www.sleepingangel.com/aboutme.html
Hello and Welcome to my website! I am a graphic artist, photographer, author, webmaster, blogger and more. I just received a double degree in Graphic Design and Digital Photograph from Antelope Valley College and I love what I do. What’s in a name you may ask why ‘Sleeping Angel? And on paperback both at Amazon. And at Lulu.com. In an effort to help moms facing similar situations. I was also lucky enough to have a healthy son, Connor, and the fact that he's normal and healthy is something I never, ever t...
ingarrettsmemory.blogspot.com
Garrett's House: Site Index
http://ingarrettsmemory.blogspot.com/p/site-index.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. New EB parents need to know from the very start. What friends and family. The do’s and don’t. S when it comes to an EB baby in the hospital. For those with EB. For information on wound care,. And wound care products. How we do bath/dressing changes. EB friendly baby products and gear. Including diapers, and clothing). Information on Acid Reflux. Our experience with G-Tubes.
gwenrn.com
Nurses - Gwen RN
http://www.gwenrn.com/nurses.html
Home Health Nursing Resources. Epidermolysis Bullosa (EB): A Parent’s Guide. Dressings: cutting and application guide. Dressing Selection Guide by Wound Condition. Hollister Dressing Selection Guide. Wound Care Products (Byram Healthcare). Wound Care Products (Wound Care Information Network). Fistula and Wound Management System. Ostomies and Fistulas: A Collaborative Approach. Selecting a Fistula Pouch: An Algorithm. Home Health Nurse Education. National Alliance of Wound Care and Ostomy. Skin at Risk Al...
ingarrettsmemory.blogspot.com
Garrett's House: Heal EB - Cause The Wave
http://ingarrettsmemory.blogspot.com/2014/10/heal-eb-cause-wave.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. October 20, 2014. Heal EB - Cause The Wave. Subscribe to: Post Comments (Atom). The largest EB research foundation. McKesson Patient Care Solutions Inc. (MPCS). The leading wound care supplier for those with EB. A great resource for those with EB. Befriend EB: "to help make their lives more bearable". Epidermolysis Bullosa Medical Research Foundation. The Garden of Angels.
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