emberriley.blogspot.com
Ember's Story: July 2010
http://emberriley.blogspot.com/2010_07_01_archive.html
Sunday, July 25, 2010. Ember didn't care, she was determined to hold her. She settled for touching her and saying "Awww Baby" a lot. I hate to leave this update on a sad note, so here's a cute thought. Ember's hair is now just long enough to put into pigtails! It is the most adorable thing I have seen yet! I will try to post pics soon. Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Posts (Atom). To follow up on the first part of our journey, please go to www.caringbridge.com/visit/emberzstory. A blog fo...
emberriley.blogspot.com
Ember's Story: Home away from home....
http://emberriley.blogspot.com/2011/03/home-away-from-home.html
Monday, March 28, 2011. Home away from home. First of all, I know that I am such a bad Liver mommy as far as the updates go! I hadn't realized that the last update was in December! Ember has been doing relatively well since the last update. We did have an overnight stay a few months ago at Children's for about of pneumonia. Even though we hadn't been on the floor with her since she was 8 months old, it was still familiar and it was like we were visiting our long lost home. We are going to get her labs do...
emberriley.blogspot.com
Ember's Story: October 2010
http://emberriley.blogspot.com/2010_10_01_archive.html
Friday, October 22, 2010. Our lives have changed. As she grew she became healthier and more active. She never did crawl by the way. She just went straight to walking! And now, you just can't stop her! Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Posts (Atom). To follow up on the first part of our journey, please go to www.caringbridge.com/visit/emberzstory. Over 100,000 people are on the Organ and Tissue donor waiting list. Who will you help? Our lives have changed. Fall and Winter and Spring, Part 2.
emberriley.blogspot.com
Ember's Story: March 2010
http://emberriley.blogspot.com/2010_03_01_archive.html
Thursday, March 11, 2010. Tuesday we took Ember to the allergist for allergy testing. In November she broke out in hives around her mouth after eating something. We had assumed that it was from the meringue off of a pie. So, we made the appointment for March and waited. My little monkey is going to be 2? Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Posts (Atom). Ember was born May 30th, 2008 and was diagnosed with a rare liver disease, Biliary Atresia, at just 11 weeks old. She received her life s...
emberriley.blogspot.com
Ember's Story: January 2010
http://emberriley.blogspot.com/2010_01_01_archive.html
Friday, January 8, 2010. Ember has been getting along pretty well since Autumn has arrived. The novelty of having a new baby has not worn off yet. I am waiting for it to happen, but so far so good. She constantly wants to love on and hug Autumn. She even tries to help us burp her whenever she can. Though, sometimes she does try a little too hard! Aside from getting along with Autumn, she is getting into EVERYTHING! I should have learned long before now that I can't turn my back at all! Too cute as well!
emberriley.blogspot.com
Ember's Story: May 2011
http://emberriley.blogspot.com/2011_05_01_archive.html
Tuesday, May 31, 2011. That's right, 3! This tiny, yellow baby that we brought home from the hospital is now a perfectly happy and relatively healthy 3 year old? I also can't believe how much Ember has grown over the past year. Not just physically, but developmentally as well. She is incredibly smart! Way too smart for our own good. She loves preschool and loves to play with sissy. However, the terrible three's set in about 2 months early and they rear their ugly head every day! I hope she likes her danc...
emberriley.blogspot.com
Ember's Story: November 2011
http://emberriley.blogspot.com/2011_11_01_archive.html
Friday, November 18, 2011. I can't see the screen here! It's hard not to tear up when I think of everything she has been through in her short little life. She continues to be one of the strongest people I know. It's hard to believe that we went from this:. In those three years! For those of you still waiting for "The Call", don't give up hope. We are here with you and waiting to welcome you to the other side of transplant. We hope and pray that your will have the perfect gift at the perfect time. May all...
emberriley.blogspot.com
Ember's Story: The call...4 years ago
http://emberriley.blogspot.com/2012/11/the-call4-years-ago.html
Friday, November 16, 2012. The call.4 years ago. Four years ago today we received the call that would change our lives forever. Around 9:30pm on a Sunday night we received a call from one of the transplant coordinators at Children's telling us that they had a possible liver for Ember. We arrived at the hospital Monday morning and started waiting to receive word about surgery. Here is what I wrote about getting the call. Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Post Comments (Atom). Ember was born ...
emberriley.blogspot.com
Ember's Story: November 2012
http://emberriley.blogspot.com/2012_11_01_archive.html
Sunday, November 18, 2012. The gift of life.4 years ago. Jeannie, Jane, Angel, Mommy, etc. Friday, November 16, 2012. The call.4 years ago. Today Ember is a happy and healthy little girl. We couldn't be more blessed. Please keep her donor family in your thoughts as I am sure this is a hard time for them. While we are celebrating her second chance at life, they are mourning the loss of their little one. Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Posts (Atom). Ember was born May 30th, 2008 and was dia...
