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| Diamond Blackfan Anemia Foundation, Inc.

| for patients… for families… for research

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| Diamond Blackfan Anemia Foundation, Inc. | dbafoundation.org Reviews

https://dbafoundation.org

| for patients… for families… for research

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1

About Us | Diamond Blackfan Anemia Foundation, Inc.

http://dbafoundation.org/about-us

Diamond Blackfan Anemia Foundation, Inc. For patients…for families…for research. Sign Up For Our E-Newsletter. News & Events. About the DBA Foundation. Fighting to Find the Cause and Cure for Diamond Blackfan Anemia. The DBAF is a 501(c)(3) not-for-profit corporation registered with the Charities Bureau of New York State Department of Law, 120 Broadway, New York, New York 10271. Click to view a copy of the DBAF’s 2013 IRS 990 Form. Click to view copies of the DBAF’s Whistleblower Protection Policy. Finn ...

2

Learn More | Diamond Blackfan Anemia Foundation, Inc.

http://dbafoundation.org/learn-more

Diamond Blackfan Anemia Foundation, Inc. For patients…for families…for research. Sign Up For Our E-Newsletter. News & Events. What is Diamond Blackfan Anemia? Diamond Blackfan Anemia is the preferred name for this disorder but other names for DBA include:. Congenital pure red cell aplasia. Aase syndrome (felt to be a subset of DBA in which there is a finger-like thumb, and not a distinct disorder). Gabriel – 7 years. We hope for an easier life, until then we are grateful for each day together. James Thom...

3

Fundraising | Diamond Blackfan Anemia Foundation, Inc.

http://dbafoundation.org/fundraising

Diamond Blackfan Anemia Foundation, Inc. For patients…for families…for research. Sign Up For Our E-Newsletter. News & Events. The Diamond Blackfan Anemia Foundation, Inc. (DBAF) is proud to fund research projects and acknowledges that it is the hard work, coupled with the love and generosity of our families and friends, which enables us to continue our efforts. We are sincerely grateful for the commitment of the many donors that have supported our accomplishments. The DBAF is here to help you and we will...

4

A Parent’s Perspective… Camp Sunshine 2015

http://dbafoundation.org/a-parents-perspective-camp-sunshine-2015

Diamond Blackfan Anemia Foundation, Inc. For patients…for families…for research. Sign Up For Our E-Newsletter. News & Events. A Parent’s Perspective… Camp Sunshine 2015. By Casey Sears Wilson. We pulled up to the Camp, not knowing what to expect and were met by a sea of people in yellow shirts, welcoming us to Camp Sunshine. Wonderfully disarming! The most empowering parts of the whole trip were the sessions with the doctors and researchers. Let me assure you, if you have donated money to DBA Canada ...

5

Families | Diamond Blackfan Anemia Foundation, Inc.

http://dbafoundation.org/families

Diamond Blackfan Anemia Foundation, Inc. For patients…for families…for research. Sign Up For Our E-Newsletter. News & Events. We invite you to share your personal experiences with our DBA family. To add a patient’s photo, your family’s link, news story links, and DBA fundraising announcements to our site, please email the information to DBAFoundation@juno.com. In memory of Haley Callahan. In memory of Keilani Delgado. In memory of Lakshmi Desai. Where to Get Support. DBA Families in the News. And when th...

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Diamond Blackfan Anemia - MayRoseLilli

http://www.mayrosehurst.org/diamond-blackfan-anemia.html

Hospitalizations and Medical Care. Sarah Jane Brain Foundation. Siblings of ill Children. MayRose has been officially diagnosed by Dr. Adrianna Vlachos at Schnieder Children's Hospital, Division of Pediatric Hematology/Oncology and Stem Cell Transplantaton. As having Diamond Blackfan Anemia. MayRose tested postive for the RPS 19 gene. MayRose has been entered into the Diamond Blackfan Anemia Registry. Diamond Blackfan Anemia is the preferred name for this disorder but other names for DBA include:. Bull; ...

thebhivefamilyblog.blogspot.com thebhivefamilyblog.blogspot.com

The B Hive: 2012 Timeline

http://thebhivefamilyblog.blogspot.com/2013/04/2012-timeline.html

Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Monday, April 8, 2013. A little recap from 2012. I returned to work in January from maternity leave and got back into the swing of part-time work as an SLP. Ben took a new job at Medifast and continues to enjoy his job. Bailey took swim lessons to get ready for pool days and the beach. Bailey and I rode the lightrail and went to our first St. Patrick's Day parade downtown together. Becca went to her first HonFest! Ben decided aft...

thebhivefamilyblog.blogspot.com thebhivefamilyblog.blogspot.com

The B Hive: June 2013

http://thebhivefamilyblog.blogspot.com/2013_06_01_archive.html

Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Saturday, June 29, 2013. Ok, so I hate cloudy days, rainy days, and being cooped up! BUT, I also love outings with my girls and teaching them to LOVE and SERVE others! Sooo, anyone have an extra umbrellas they can donate? I know we'll be having many more rainy days this summer. Saturday, June 29, 2013. Subscribe to: Posts (Atom). View my complete profile. Information, links, and causes near and dear to our hearts.

thebhivefamilyblog.blogspot.com thebhivefamilyblog.blogspot.com

The B Hive: End of another football season...

http://thebhivefamilyblog.blogspot.com/2012/02/end-of-another-football-season.html

Welcome to our familys blog! Stay awhile. Love, Ben Betty Bailey and Becca. Thursday, February 2, 2012. End of another football season. Well, the Superbowl is this Sunday, and unfortunately I couldn't care less after the Ravens loss. Becca was so full of enthusiasm at the start of the game. And Bailey was not happy with the missed field-goal which ended the game. See you next year Ravens. Thursday, February 02, 2012. Subscribe to: Post Comments (Atom). View my complete profile. View my complete profile.

thekylerkasperfoundation.org thekylerkasperfoundation.org

The Kyler Kasper Foundation |  Donation

http://thekylerkasperfoundation.org/donation

The Kyler Kasper Foundation. The Kyler Kasper Foundation. Is a brand new 501 (c) 3 organization in Northwest Arkansas. Without the community’s help with blood donation, volunteers, and monetary donations, we would not be able to operate. If we can not operate than we are unable to help find a cure for DBA and the children that are affected by this. Children like Kyler. So please donor today. No amount is too little. St Jude's Childrens Research Hospital. All Content 2009 The Kyler Kasper Foundation.

kjgfoundation.org kjgfoundation.org

Kevin J. Gately Foundation

http://www.kjgfoundation.org/donate.htm

The Kevin J. Gately Foundation, Inc. Inspired by Kevin, driven by your compassion. Help us make a difference. On behalf of The Kevin J. Gately Foundation we would like to ask you to consider donating an item, gift certificate, or service to be used for a raffle prize at an upcoming fundraising event. Gift certificates or cash donations in place of merchandise are welcome. Your donation will help us to continue to support the Diamond Blackfan Anemia Foundation. July 14, 2014.

tenkids2dogs.blogspot.com tenkids2dogs.blogspot.com

7th Circle of Hell with Cartoon Characters: June 2010

http://tenkids2dogs.blogspot.com/2010_06_01_archive.html

Ever wonder what its like to have more kids then the Brady Bunch? Well, I don't wonder. I live it! Thursday, June 3, 2010. 140 Miles To A Cure! All right kids. you know i never ask for ANYTHING. but this? I will beg for. Please help secure Kylies future by helping fund the research that has already saved her life MANY times over. Support Joe Creiler. Support Kylie.Support all the families that will someday hear "Your child has DBA". Believe you me, its more frustrating for ME then YOU!

mckindreemarie.blogspot.com mckindreemarie.blogspot.com

McKindree Marie: September 2016

http://mckindreemarie.blogspot.com/2016_09_01_archive.html

Monday, September 19, 2016. Fall Vibes and Fun Times. Bombers and suede are a few of my favorite trends this fall. Although it's not quiet "fall" yet here in AZ, I like to pretend it is. It's my favorite season, when the air is crisp and the leaves start to change. It's perfect here. These pieces are amazing for the transition from summer to fall. I paired these items with an awesome Lizard Thicket tee and choker, which is also another 90's trend I'm LOVING! Go visit their shop before they sell out!

mckindreemarie.blogspot.com mckindreemarie.blogspot.com

McKindree Marie: September 2014

http://mckindreemarie.blogspot.com/2014_09_01_archive.html

Tuesday, September 23, 2014. One step at a time (day 31). It's day 31, can you believe it? I was on Neupogen shots for a few weeks after I got my cells to stimulate cell growth and help with engraftment. MOST PAINFUL SHOT OF MY LIFE! This is a huge milestone in transplant, because my body is finally trying to start to make my own cells. I've received countless platelet transfusions and a few blood transfusions. Click on link to check them out). They found out I loved to blog, so they surprised me wit...

mckindreemarie.blogspot.com mckindreemarie.blogspot.com

McKindree Marie: August 2014

http://mckindreemarie.blogspot.com/2014_08_01_archive.html

Wednesday, August 27, 2014. It's day 3, in transplant language that's 3 days after you get your cells. That was an incredible day, but since then, things have just not been easy. My counts are dropping, which is expected. My ANC is pretty much non-existent, so I am very susceptible to infection, and my hemoglobin and platelets continue to drop. They'll probably transfuse me tomorrow. In the mean while, I'm hoping for better days to come. All of this is just not easy, but I CAN and I WILL do it. Yepyou're...

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| Diamond Blackfan Anemia Foundation, Inc.

Diamond Blackfan Anemia Foundation, Inc. For patients…for families…for research. Sign Up For Our E-Newsletter. News & Events. It is because of these faces and hundreds more unseen, in collaboration with the dedication, hard work, and the love of all our DBA families that we continue to exist. It is because of our passion to ensure our loved ones a better life that we remain solidly committed to our mission. Dawn M. Baumgardner. Camp Sunshine 2017 Recap. Oh Camp Sunshine we are so very grateful!

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