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emsp eurems multiple sclerosis european
Project Backgroud
http://www.eurems.eu/index.php/project-backgroud
The EU faces deep inequalities in the way multiple sclerosis (MS) is managed from country to country. MS management refers to: access to disease-modifying drugs approved by the European Medicines Agency ( EMA. Access to symptomatic treatment and standard healthcare services; living and working conditions. EMSP had already laid the foundations for a centralised system of MS data collection through its earlier projects:. Multiple Sclerosis Information Dividend ( MS-ID. Run between 2007 and 2009;. Systems f...
News & Events
http://www.eurems.eu/index.php/news-a-events
The EUReMS Report is out: Better Outcomes with Better Data. EMSP is glad to annouce to all EUReMS stakeholders, partners and supporters that we have published, in early October 2014, a report on the activity and progress registered by our EUReMS project between 2011 and 2014. The report is called. A collaborative initiative to improve MS research and policy across Europe: Better Outcomes with Better Data". Find the digital version of the report here. As part of the ACTRIMS-ECTRIMS 2014. Estimating Preval...
Q & A
http://www.eurems.eu/index.php/qaa
What is the Purpose of EUReMS? EUReMS aims to establish a system for collection of high-quality and comparable MS data in Europe. Are there other systems for MS data collection in Europe? MS registries and databases have been set up at a national or regional level in a number of European countries (eg: Denmark, Sweden, France, Germany, Norway, Italy or Spain) for various purposes. Why do we need a system for MS data at a European level? EUReMS will focus on the follwoing four areas:. Regional, national o...
Multiple Sclerosis
http://www.eurems.eu/index.php/multiple-sclerosis
Multiple sclerosis is a disease of the central nervous system, inflicting a wide range of relapsing symptoms, from muscle weakness to chronic pain and depression. Mostly diagnosed between the ages of 20 and 40. It affects almost twice as many women as men. There is no cure for MS yet. But access to specialists and treatment helps people manage the condition. The total costs of managing MS in Europe have been estimated at 15 billion euros. Find more about MS from:. Of EMSP's Under Pressure project.
Project Results
http://www.eurems.eu/index.php/project-results
The results of the European Register for Multiple Sclerosis (EUReMS) project will be measured against the following set objectives:. Build on already existing national or regional data collections;. Involve and combine the expertise of clinicians, researchers and patients organizations;. Address questions at international level;. The EUReMS has received co-funding from the European Union, in the framework of the Health Programme.
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Kontakti | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/kontakti
Moje pravo na rad s MS-om. SAVEZ DRUŠTAVA MULTIPLE SKLEROZE HRVATSKE. Je nestranačka, nevladina, neprofitna, društvena organizacija osoba oboljelih od multiple skleroze, članova njihovih obitelji i ostalih građana koji svojim radom žele pomoći Društvu u svrhu ostvarivanja radnji i mjera na promicanju liječenja, rehabilitacije, istraživanja i zaštite osoba oboljelih od multiple skleroze i srodnih bolesti. Telefon i fax: 01/6554 757. E-mail: sdms hrvatske@sdmsh.hr. Dopredsjednica SDMSH: Snježana Raić.
U Hrvatskom saboru predstavljene su Završne primjedbe UN-ovog Odbora o provedbi Konvencije o pravima osoba s invaliditetom Hrvatskoj | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/u-hrvatskom-saboru-predstavljene-su-zavrsne-primjedbe-un-ovog-odbora-o-provedbi-konvencije-o-pravima-osoba-s-invaliditetom-hrvatskoj
Moje pravo na rad s MS-om. U Hrvatskom saboru predstavljene su Završne primjedbe UN-ovog Odbora o provedbi Konvencije o pravima osoba s invaliditetom Hrvatskoj. Okrugli stol na kojem su predstavljene preporuke Odbora održao je saborski Odbor. Za zdravstvo i socijalnu politiku. U uvodnom dijelu okrugloga stola nazočnima se obratio predsjednik Hrvatskoga sabora Josip Leko. Istaknuo je da je za svako društvo, pa tako i hrvatsko, važno izjednačavanje i uključivanje osoba s invaliditetom u sve vidove druš...
SOS MS | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/sos-ms
Moje pravo na rad s MS-om. Provedba Nacionalne strategije izjednačavanja mogućnosti za osobe s invaliditetom 2007. do 2015. godine, jamči posebnu skrb države u zaštiti osoba s invaliditetom. Partnerska organizacija na programu: Centar za socijalnu skrb Zagreb. 22 Život u zajednici. 25 Socijalna skrb i mirovinsko osiguranje. 29 Informiranje, komunikacija i podizanje razine svijesti. 212 Istraživanje i razvoj. Povećanje socijalnog uključivanja korisnika programa, oboljeli od multiple skleroze. Učiniti dost...
Osobni asistent | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/osobni-asistent
Moje pravo na rad s MS-om. Program “Usluge osobnog asistenta za osobe oboljele od multiple skleroze s najtežom vrstom i stupnjem invaliditeta”, 2016-2018. Savez društava multiple skleroze Hrvatske. 2013 do 2015. godine. Vladimir Komparić, dr.med. 1godina provedbe: 459.595,00 kn. 2godina provedbe: 459.595,00 kn. 3godina provedbe: 506.785,00 kn. 8211; Rasterećenje članova obitelji oboljelih od multiple skleroze od kontinuirane skrbi za oboljele od multiple skleroze s najtežom vrstom i stupnjem invaliditeta.
Programi/Projekti | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/programiprojekti
Moje pravo na rad s MS-om. Osnivanje sekcija Društava multiple skleroze. 1999 2003.): projektom je osnovana 21 sekcija Društva multiple skleroze na području Hrvatske;. Tiskanje edukativno – propagandnog materijala. Od 2000.): tiskanje edukativnog materijala, brošura, te priručnika Kako živjeti s multiplom sklerozom u suradnji s Klinikom za neurologiju KB Sestre milosrdnice u Zagrebu (4 izdanja);. Posjete i pomoć nepokretnim i teže pokretnim članovima. Razvoj pet regionalnih centara za multiplu sklerozu.
Ispunite anketu! Važno je za sve nas! | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/ispunite-anketu-vazno-je-za-sve-nas
Moje pravo na rad s MS-om. Važno je za sve nas! EMSP je lansirao anketu za oboljele od multiple skleroze koja je prvenstveno fokusirana na specifične situacije i potrebe osoba s multiplom sklerozom. Anketa je dostupna na slijedećem linku: http:/ www.emsp.org/tools/ms-patient-survey/. I na hrvatskom jeziku. Redovna godišnja skupština sdmsh 04.07.2015 04/07/2015 - 21:51. PLIVAzdravlje - Centar Multipla. Društvo multiple skleroze Virovitičko podravske županije – Obilježavanje.
Održana Redovna Godišnja Skupština SDMSH, 04.srpnja 2015. | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/odrzana-redovna-godisnja-skupstina-sdmsh-04-srpnja-2015
Moje pravo na rad s MS-om. Održana Redovna Godišnja Skupština SDMSH, 04.srpnja 2015. 04 Srpnja 2015. održana je redovna godišnja Skupština SDMSH, u restoranu NK Trnje. Otvaranje Skupštine, pozdravna riječ predsjednika SDMSH Vladimira Komparića, dr.med. Usvajanje Poslovnika o radu redovne godišnje Skupštine Saveza društava multiple skleroze Hrvatske. Izbor radnih tijela Skupštine:. Zapisničar i dva ovjerovitelja. Usvajanje dnevnog reda Skupštine. Prijedlog novog teksta Statuta SDMSH rasprava i usvajanje.
Društvo multiple skleroze Zagrebačke županije | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/drustvo-multiple-skleroze-zagrebacke-zupanije
Moje pravo na rad s MS-om. Društvo multiple skleroze Zagrebačke županije. Društvo multiple skleroze Zagrebačke županije. Tel:01/ 6539 529 Fax:01/ 6539 529 EMAIL: dmszag.zup@gmail.com. Krušlinova 6, 10 290. 8211; Branka Lukić dmszag.zup@gmail.com. Poslovna tajnica Društva – Leona Šarčević. Cilj nam je pomoći svima oboljelima. Ukoliko imate neko pitanje na koje niste pronašli odgovor na stranicama, kontaktirajte nas i bit će nam drago da Vam pomognemo. Žiro račun udruge: 2360000-1101800779 Zagrebačka banka.
Vijesti | Savez Društava Multiple Skleroze Hrvatske
http://sdmsh.hr/web/vijesti
Moje pravo na rad s MS-om. Zahvaljujemo na odobrenju projekta! Zahvaljujemo se Gradu Svetoj Nedelji na odobravanju financijskih sredstava za provedbu projekta “Pravom informacijom do zdravlja” a s kojim i sufinanciramo održavanje ovogododišnjeg simpozija. Prikupljeni podaci biti će uključeni u ECTRIMS publikaciju i biti predstavljeni na 32. Kongresu ECTRIMS-a u Londonu, u rujnu 2016. Dvadeset pet inovativnih farmaceutskih kompanija koje posluju u Hrvatskoj objavile su podatke o ukupnim prijenosima vrijed...
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As the automotive industry, also the PV industry faces the fact that end users spend big amounts of money for a system, and thus they will not "let it go" if the system is failing before the predicted life span is reached as they do with "low cost" consumer goods as cell phones, computer equipment, watches . Also as the automotive industry, the electronics in the PV industry are exposed to the elements (humidity, elevated temperatures, ESD. Much more than normal consumer goods . Eurems is a collective of...
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Welcome to the EUReMS website! The European Register for Multiple Sclerosis (find presentation flyer here. Run between 2011 and 2014 by a consortium of academic institutions and NGOs, addresses the lack of data at EU and national level on treatment and care for people with multiple sclerosis (MS). EUReMS has the potential to help all relevant stakeholders in Europe better understand the nature and impact of MS, and shape research and policy action towards improving the quality of life of those affected.
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McMillan - McGee Corp. 1 Feasibility and Preliminary Study. 3 Field Pilot Test. 4 Calculation and Final Design. Incremental innovation backed up by feedback based on experience. Technical excellence to ensure client support. Health and Safety is of paramount importance at all times. The value of our engineering knowhow is enhanced. By our activities in the field. Truth lies in the detail. In situ remediation is all about detail. Expertise in our respective fields,. Technological maturity, which goes hand...
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Euremys | Cabinet de Conseil et Assistance Technique
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EUREN Network
Welcome to the European Economic Network. EUREN (for EURopean Economic Network) is a network consisting at the time being of nine European economic research institutes. It was created in 1999 aimed to improve the analyses of the European economy in a context of major institutional changes in the European Union, especially the setting-up of the Euro as a single currency. Since then, EUREN regular publishs. Forecasts of the Euro area economy and other studies of European interest.