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Forgotten Diseases Research Foundation | Home | forgottendiseases.org Reviews
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Forgotten Diseases Research Foundation | About Us
http://www.forgottendiseases.org/assets/about.html
Forgotten Diseases Research Foundation. The Forgotten Diseases Research Foundation is a 501c(3) non-profit organization. We opened our doors in early 2012. We have created a free online tool that will help people get a diagnosis for rare and very rare disesases. You can access it here. The information on this site should be useful for pediatricians, endocrinologists, neurologists, and other clinicians interested in growth, as well as researchers, parents, and anyone interested in how people grow. The For...
Forgotten Diseases Research Foundation | Susac's Syndrome (SS)
http://www.forgottendiseases.org/assets/Susac_Syndrome.html
Forgotten Diseases Research Foundation. Susac's Syndrome, sometimes Susac Syndrome (SS) is also known as retinocochleocerebral vasculopathy, microangiopathy with retinopathy, encephalopathy and deafness (RED-M), or small infactions of cochlear, retinal and encephalic tissues (SICRET) syndrome. SS is a neurological disease affecting the endothelium (lining) of small blood vessels in the brain, inner ear, and retina. Common problems in SS. Hearing loss, vertigo and/or tinnitus. Confusion, memory difficulti...
Forgotten Diseases Research Foundation | Ehlers-Danlos Syndrome, Periodontitis (Type 8)
http://www.forgottendiseases.org/assets/EhlersDanlos_Periodontitis_Type8.html
Forgotten Diseases Research Foundation. Ehlers-Danlos Syndrome, Periodontitis (Type 8). Ehlers-Danlos syndrome is a condition that affects connective tissue - - particularly, collagen. Collagen is an abundant structural protein found in muscles, tendons, skin and bones. It can be thought of as both holding the body together and strengthening it. Or a more technical description. The EDS syndromes as a group also have a classification system. This sytem is called the Villefranche classification. Percentage...
Forgotten Diseases Research Foundation | Global Growth Curves
http://www.forgottendiseases.org/assets/global-growth-curves.html
Forgotten Diseases Research Foundation. We have hundreds of growth curves for children in countries around the world. We've organized them in different ways to make them easier to find. Alphabetical list of countries. List of countries by continent. Syndromes Listed by Name. Syndrome Listed by Country. Curves for size at birth. New Growth Curves: Countries. New Growth Curves: Syndromes. Sickle Cell Disease (Jamaica). Growth of Children with Special Needs. Page last modified on 20 April 2016.
Forgotten Diseases Research Foundation | Ehlers-Danlos Syndrome, Arthrochalasia (Types 7A & 7B)
http://www.forgottendiseases.org/assets/EhlersDanlos_Arthrochalasia_Type7A_B.html
Forgotten Diseases Research Foundation. Ehlers-Danlos Syndrome, Arthrochalasia (Types 7A and 7B). Ehlers-Danlos syndrome is a condition that affects connective tissue - - particularly, collagen. Collagen is an abundant structural protein found in muscles, tendons, skin and bones. It can be thought of as both holding the body together and strengthening it. Or a more technical description. Villefranche uses descriptive terms for different types of EDS (e.g. vascular. Percentages of male and female patients...
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Forgotten Diseases Research Foundation | Home
Forgotten Diseases Research Foundation. Welcome to the FDRF. Help Diagnose Rare Diseases. We've developed a free online tool to help diagnose rare diseases. You can access a beta version of it here. We also provide free information about child growth. We have a large collection of growth charts from countries around the world (including charts for growth in different diseases). New study of CS, TTD, and A-T! We're trying to find ways to improve how CS and TTD are managed. To do this, we need to under...
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