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Just Breathe

Anthony Gene Trupiano's Story. Anthony's life began with an emergency c-section. Previous to that, I noticed decreased fetal movement in my last trimester. My obstetrician ordered several non-stress tests but each one came back fine. The last one, they decided to also have an ultrasound conducted and noticed that I only had 20% amniotic fluid. So that day I was admitted into the hospital and was to be induced the next day. After I came to, I asked what we had and asked how he was doing. He was great!

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Just Breathe | livingformrw.blogspot.com Reviews
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Anthony Gene Trupiano's Story. Anthony's life began with an emergency c-section. Previous to that, I noticed decreased fetal movement in my last trimester. My obstetrician ordered several non-stress tests but each one came back fine. The last one, they decided to also have an ultrasound conducted and noticed that I only had 20% amniotic fluid. So that day I was admitted into the hospital and was to be induced the next day. After I came to, I asked what we had and asked how he was doing. He was great!
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1 pages
2 meet makenzie rye
3 smard
4 the jackson laboratory
5 anthony's story
6 andrea m trupiano
7 posted by
8 just breathe
9 no comments
10 logan's story
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Just Breathe | livingformrw.blogspot.com Reviews

https://livingformrw.blogspot.com

Anthony Gene Trupiano's Story. Anthony's life began with an emergency c-section. Previous to that, I noticed decreased fetal movement in my last trimester. My obstetrician ordered several non-stress tests but each one came back fine. The last one, they decided to also have an ultrasound conducted and noticed that I only had 20% amniotic fluid. So that day I was admitted into the hospital and was to be induced the next day. After I came to, I asked what we had and asked how he was doing. He was great!

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livingformrw.blogspot.com livingformrw.blogspot.com
1

Just Breathe: Learn of SMARD

http://livingformrw.blogspot.com/2011/08/learn-of-smard.html

But in the meantime- I ask for your help. Help in spreading the word. Help in donating a few dollars. Help by giving your support to fundraisers. Everything helps. I have had a couple guest bloggers who have told their story. I want to continue this. Please keep checking in and reading more. Read about these little lives. Read about their everyday. Read about what SMARD means to them. If you have any questions please ask! Subscribe to: Post Comments (Atom). To donate to MRW Live, Laugh, Breathe Events:.

2

Just Breathe: SMARD Guest - Presley

http://livingformrw.blogspot.com/2011/06/smard-guest-presley.html

SMARD Guest - Presley. You will love her too. Meet this very special, very beautiful, very inspiring little girl named Presley. Written by Presleys incredible Mum:. Presley will be 3 years old in July. She is a very happy, spunky, silly little girly girl! She is so smart and so patient! She inspires so many who know her because of her strong spirit and silly happy outlook on life! She was even walking with a walker and starting to take steps on her own! She gives me my strength! She is so fun to cuddle a...

3

Just Breathe: Anthony's Story

http://livingformrw.blogspot.com/2011/09/anthonys-story.html

Anthony Gene Trupiano's Story. Anthony's life began with an emergency c-section. Previous to that, I noticed decreased fetal movement in my last trimester. My obstetrician ordered several non-stress tests but each one came back fine. The last one, they decided to also have an ultrasound conducted and noticed that I only had 20% amniotic fluid. So that day I was admitted into the hospital and was to be induced the next day. After I came to, I asked what we had and asked how he was doing. He was great!

4

Just Breathe: The Jackson Laboratory

http://livingformrw.blogspot.com/p/jackson-laboratory.html

The term “orphan disease” is commonly applied to any debilitating medical condition that affects fewer than 200,000 Americans, young or old. These are rare diseases, but, regrettably, at last count, there were at least 6,000 of them, including SMARD—spinal muscular atrophy with respiratory distress. Thanks to research taking place at The Jackson Laboratory, there is hope for the future for those affected by this disorder. Read about the lab HERE. Subscribe to: Posts (Atom). Welcome to our blog. This ...

5

Just Breathe: Second Annual Live, Laugh, Breathe Event!

http://livingformrw.blogspot.com/2011/05/second-annual-live-laugh-breathe-event.html

Second Annual Live, Laugh, Breathe Event! I haven't wanted to write much because there are so many things still up in the air with the event. BUT we are starting to get things in order and everything is starting to fall into place. I learned last year not to put my all my heart into something because more often than not, people tend to back out last minute. AND I hate disappointing all of you. We had a planning meeting a week ago and got some great ideas and plans going. July 22, 2011 (which is a Friday).

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kendraandryanwebster.blogspot.com kendraandryanwebster.blogspot.com

Calling All Angels: Our Story

http://kendraandryanwebster.blogspot.com/p/us.html

We lived an amazing life full of love for almost 5 months but on December 13 2009 we lost her. A rare disease called. Is what took her life. Our Makenzie passed away in our arms. Ryan and I have been tested and are both carriers of the disease that killed our daughter. We have a 1 in 4 chance that any other child we have will have SMARD. We never met her but we love her. We finally got that positive result January 8th. We are due September 20th and cant be more thrilled. Subscribe to: Posts ( Atom ).

kendraandryanwebster.blogspot.com kendraandryanwebster.blogspot.com

Calling All Angels: 2/1/14 - 3/1/14

http://kendraandryanwebster.blogspot.com/2014_02_01_archive.html

Monday, February 3, 2014. I love giving books as gifts each holiday and have decided to pack the holiday books up with the holiday decor so when I get the new holiday stuff out- out comes new books :). Our Christmas book collection is obviously much bigger than Valentines, Easter, St. Patricks Day etc. but its a fun thing I like doing for Tracker and Makenzie. I write in their book when they got it and maybe someday Tracker can take his with him when he has his own kids. Here are a few of our FAVORITES.

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Calling All Angels: 5/1/15 - 6/1/15

http://kendraandryanwebster.blogspot.com/2015_05_01_archive.html

Sunday, May 24, 2015. There is nothing in my life that I love more than being a Mom. Since I can remember, I have always dreamed, wished and talked about the day I would be a Mom. Since my very first Mothers day- being a Mom but unfortunately without a baby in my arms. When Tracker was born I never dreamed how much more my heart could love. Day after day I am proven wrong that I couldn't love him anymore. How is this possible? I still can't understand it. Mothers Day is just a reminder how blessed I am.

kendraandryanwebster.blogspot.com kendraandryanwebster.blogspot.com

Calling All Angels: 3/1/15 - 4/1/15

http://kendraandryanwebster.blogspot.com/2015_03_01_archive.html

Tuesday, March 24, 2015. We have been trying to get out on the green a bit more lately. I am no good. but I try. Ryan is a bit rusty from not golfing all winter so Tracker pretty much shows us all up on the course. He has the best time. He doesn't slow down one bit and is right there with us the entire course. He waits his turn, cheers us on and plays the entire course from his first tee off to his last putt. We love being out there and love seeing how much he loves it. Sunday, March 22, 2015. We went ru...

kendraandryanwebster.blogspot.com kendraandryanwebster.blogspot.com

Calling All Angels: Not an easy topic.

http://kendraandryanwebster.blogspot.com/2015/05/not-easy-topic.html

Sunday, May 17, 2015. Not an easy topic. I started to write about these parts of my life. HERE. I wrote 2 posts last year. Shortly after my dad killed himself. I wrote a small amount. Then I had to back away from writing it. Something about writing about that part of my life has been harder than writing about anything else. Including the death of Makenzie. This past year has been the absolute worst year with it came to dealing with my flashbacks, fears, anxiety and trying to remember. Up until last year-...

kendraandryanwebster.blogspot.com kendraandryanwebster.blogspot.com

Calling All Angels: Leggings Project

http://kendraandryanwebster.blogspot.com/p/leggings-project.html

Whenever I see a pair of leggings I think of my Makenzie and her skinny little chicken legs. After Kenzie passed away I knew right away I wanted to share our love of the leggings with as many other kids as we could. The thing that's great about the leggings is you can not only wear them on your legs but your arms as well and they can be worn by kids of all ages. The first year we did the leggings project we received an incredible outpouring of support. We donated so many leggings, blankets, hats and toys.

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German Family: May 2009

http://grmnfmly.blogspot.com/2009_05_01_archive.html

Friday, May 29, 2009. I should have known]. Me: "Quintin why are your fingernails so dirty? Quintin: "Cause I'm a boy.". I think it's time for a bath. Posted by Heather German. Subscribe to: Posts (Atom). MRW- Please help support! Just click on the button! I should have known].

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German Family: My FOOLS!!!!!

http://grmnfmly.blogspot.com/2010/04/my-fools.html

Thursday, April 1, 2010. The family was quite impressed by. My new skills in the kitchen. I totally won for the best prank this year! Does Chads hand look freaky to anyone else? Interested in eating,. Found a bug in his food-. It kinda freaked him out. So all he ended up having for dinner was some H2O,. E decided licking was funner any way,. E is part puppy you know. Posted by Heather German. Mom is the best. Subscribe to: Post Comments (Atom). MRW- Please help support! Just click on the button!

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German Family: July 2009

http://grmnfmly.blogspot.com/2009_07_01_archive.html

Wednesday, July 8, 2009. I usually wonder what in the world I am thinking when I pull out the paint. But it all turned out great! Zach was half asleep but he enjoyed himself! Quintin was very into it, making everything perfect, he ended up with a very cute turtle! Posted by Heather German. Subscribe to: Posts (Atom). MRW- Please help support! Just click on the button!

grmnfmly.blogspot.com grmnfmly.blogspot.com

German Family: January 2009

http://grmnfmly.blogspot.com/2009_01_01_archive.html

Wednesday, January 28, 2009. Eating his yogurt and sleeping at the same time, it made me tired. Just watching him. I love my days! Posted by Heather German. Tuesday, January 27, 2009. On Sunday the snow began falling just as sacrament meeting. Got out (at church), they were some of the biggest flakes I have ever seen, all the kids were so excited! I let Quin and Al go out for a little while at church while we waited for Chaddy to get out of his meeting, and then we headed home and got all bundled up.

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Just Breathe

Anthony Gene Trupiano's Story. Anthony's life began with an emergency c-section. Previous to that, I noticed decreased fetal movement in my last trimester. My obstetrician ordered several non-stress tests but each one came back fine. The last one, they decided to also have an ultrasound conducted and noticed that I only had 20% amniotic fluid. So that day I was admitted into the hospital and was to be induced the next day. After I came to, I asked what we had and asked how he was doing. He was great!

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