glycosadeusa.com
GSD Support | Glycogen Storage Disease | Glycosade
https://glycosadeusa.com/resources/gsd-community-support
Outside of the USA, click here for more information. Press Esc to close. The information contained on this site is intended for North American customers only. If visiting from outside the USA, please refer to the Vitaflo International site at www.vitafloweb.com. A major innovation in the dietary management of glycogen storage disease (GSD). About Glycogen Storage Disease. Glycosade & GSD Lectures. About Glycogen Storage Disease. Glycosade & GSD Lectures. About Glycogen Storage Disease.
glycosadeusa.com
Glycogen Storage Disease Resources | Glycosade
https://glycosadeusa.com/resources
Outside of the USA, click here for more information. Press Esc to close. The information contained on this site is intended for North American customers only. If visiting from outside the USA, please refer to the Vitaflo International site at www.vitafloweb.com. A major innovation in the dietary management of glycogen storage disease (GSD). About Glycogen Storage Disease. Glycosade & GSD Lectures. About Glycogen Storage Disease. Glycosade & GSD Lectures. About Glycogen Storage Disease. Children’s F...
southeastgenetics.org
Video Presentations | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/education.php
Medical Home and Transitioning. Southeast NBS and Genetics Collaborative is proud to offer the following videos, presentations and lectures free of charge. For more information on these videos and other training opportunities, please use our contact page. Videos, Lectures and Presentations. Whole Genome Sequencing – It’s Time Has Arrived. 2016 SERC-SERGG Annual Conference. Ponte Vedra Beach, FL. July 16th, 2016. Finding Pearls in a Sea of Skeletal Dysplasias. 2016 SERC-SERGG Annual Conference. 2016 SERC-...
isns-neoscreening.org
Links - ISNS
http://www.isns-neoscreening.org/links
Regional and National Screening Societies. DGNS Deutsche Gesellschaft für das Neugeborenen-Screening auf endokrine und metabole Störungen. Http:/ www.screening-dgns.de/. AFDPHE Association Française pour le Depistage et la Prévention des Handicaps de lEnfant. Http:/ www.afdphe.org/. SIMMESN Società Italiana per lo studio delle Malattie Metaboliche Ereditarie e lo Screening Neonatale. Http:/ www.simmesn.it. AECNE Asociación Española de Cribado Neonatal. UK Newborn Screening Programme Centre. PANS is made ...
georgiapku.org
Georgia PKU Connect :: News & Events
http://www.georgiapku.org/NewsEvents.html
News About Georgia PKU Connect. Will be held August 26 - 28 in Winder, Georgia! For registration and volunteer information, please contact Camp Director Adele Hunt at. If you or your child has a genetic metabolic condition, you don’t have to walk this journey alone. Get connected and feel supported! Fill out our Get Connected Form. Georgia PKU Connect donates $10,000. More news about Georgia PKU Connect. Georgia PKU Connect Events. August 26 28, 2016. Registration closes August 11th! Donate to the Cause.
southeastgenetics.org
Florida State Projects | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/state.php/FL/Florida
Medical Home and Transitioning. British Columbia (Canada) (BC). Disctrict of Columbia (DC). Province of Quebec (PQ). View Full Southeast Map. Lab and Clinic Resources. Phyllis J. Sloyer PhD, RN. Ofelia A Alvarez MD. Laura S. Martin MD. Helen McCune MS, RD. Kris-Tena Albers MSN, ARNP. Dusty Edwards BSN, RN. Lois Taylor BSN, RN. New Born Screening Program Director. New Born Screening Data System Liaison. Early Hearing Detection and Intervention Coordinat. Limestone Life article highlights PKU (Athens, AL).
southeastgenetics.org
Affordable Care Act | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/affordable_care_act.php
Medical Home and Transitioning. Middot; Children under the age of 19 can no longer be denied insurance for pre-existing conditions. Young adults up to the age of 26 can now stay on their parents insurance plan. Elimination all lifetime maximum limits. Millions of uninsured Americans will gain access to affordable coverage through Affordable Insurance Exchanges and improvements in Medicaid and CHIP. Middot; Preventive Care Is Covered: Many insurers are now required to cover preventive services. This repor...
southeastgenetics.org
2010 Emory Metabolic Nutrition Symposium | News | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/article.php/61/2010_Emory_Metabolic_Nutrition_Symposium
Medical Home and Transitioning. 2010 Emory Metabolic Nutrition Symposium News. 2010 Emory Metabolic Nutrition Symposium. The Metabolic Nutrition Symposium provided attendees a foundation in genetic metabolic nutrition, and information related to the screening of newborns and short-term follow-up of patients. The lectures also addressed biochemistry, metabolic pathway, pathophysiology, and management strategies for the long-term follow-up of patients with an IEM, focusing on the four major categories ...
southeastgenetics.org
Calendar of Events | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/calendar.php
Medical Home and Transitioning. 2006, 2007, 2009, 2010, 2011, 2012, 2013 — SOUTHEAST NBS and GENETICS COLLABORATIVE — A HRSA SUPPORTED PARTNERSHIP. Mdash; GRANT #H46MC24090.
southeastgenetics.org
News | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/news.php
Medical Home and Transitioning. Limestone Life article highlights PKU (Athens, AL). Athens, AL based magazine Limestone Life features an article in their latest edition about Adam and Julie Tucker and their daughter who is diagnosed with PKU: Local Mom Works to Generate Support for Rare Disorder…. 2017 Annual Meeting for SERC/SERGG - July 13-15 in Asheville, NC. 2016 Annual Meeting for SERC/SERGG - July 14-16 in Ponte Vedra Beach, Florida. Adrenoleukodystrophy Symposium Talks (from NYMAC). GROUP ROOM RAT...
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