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Welcome to the National Biological Sample and Data Repository for PAH | PAHBiobank.org

Welcome to the National Biological Sample and Data Repository for PAH. We intend for our "power through numbers" to provide a robust study population for researchers to use in making new breakthroughs on the mechanisms and treatment of PAH. Whether you are interested in PAH, an enrolling center, a researcher or interested in enrolling you’ll find a collection of information on these pages that will help you learn more about the PAH Biobank.

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Welcome to the National Biological Sample and Data Repository for PAH. We intend for our power through numbers to provide a robust study population for researchers to use in making new breakthroughs on the mechanisms and treatment of PAH. Whether you are interested in PAH, an enrolling center, a researcher or interested in enrolling you’ll find a collection of information on these pages that will help you learn more about the PAH Biobank.
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Welcome to the National Biological Sample and Data Repository for PAH | PAHBiobank.org | pahbiobank.org Reviews

https://pahbiobank.org

Welcome to the National Biological Sample and Data Repository for PAH. We intend for our "power through numbers" to provide a robust study population for researchers to use in making new breakthroughs on the mechanisms and treatment of PAH. Whether you are interested in PAH, an enrolling center, a researcher or interested in enrolling you’ll find a collection of information on these pages that will help you learn more about the PAH Biobank.

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pahbiobank.org pahbiobank.org
1

Enrolling Centers | PAHBiobank.org

https://www.pahbiobank.org/content/enrolling-centers

The PAH Biobank Enrolling Centers are our primary contact with participants that consent to house their biological samples and data in the Biobank. The Enrolling Centers are responsible for consenting participants, drawing blood, spinning of SST tubes, and same day shipping of blood tubes overnight for processing at the Biobank. We wouldn't be able to build this resource to benefit the PAH research community without the tireless contributions of our Enrolling Centers! Russel Hirsch, MD. Adaani Frost, MD.

2

FAQs | PAHBiobank.org

https://www.pahbiobank.org/faq

What is the PAH Biobank? Where is the PAH Biobank? What samples are collected by the enrolling centers? What samples are being banked? What genetic data is being generated by the PAH Biobank? Where does the clinical data come from for the PAH Biobank? How is patient data kept confidential at the PAH Biobank? What is the PAH Biobank? Where is the PAH Biobank? What biological samples are collected from participants by the enrolling centers? What specimens are being banked? What genetic data is being genera...

3

Request Samples | PAHBiobank.org

https://www.pahbiobank.org/request-samples

If you are a PAH researcher interested in obtaining a cohort of patient samples and/or data, this page will provide information on our procedure to request samples from the PAH Biobank. We bank biological specimens, generate genetic data, and collect clinical data. And dosage data for the following genes:. Clinical data includes medical history related to PAH such as PAH subtype, initial symptoms leading to diagnosis, comorbid conditions, PAH medications and concomitant medications. If you do not have a ...

4

About Us | PAHBiobank.org

https://www.pahbiobank.org/about

Currently, there are 26 Centers from around the United States that enroll for the PAH Biobank. Participants are also enrolled here at Cincinnati Children’s Hospital in collaboration with the. Enrollees that consent to the project can be any age as long as they are diagnosed with WHO Group 1 PAH, fit the. And are willing to donate a small blood sample. In some cases, biological relatives of PAH Biobank participants may also donate blood.

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