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The Pheo Para Project | Patient stories, told by patients and their families

You have found the Pheo Para Project, a collective effort to raise awareness about pheochromocytomas and paragangliomas -- neuroendocrine tumors which affect men and women of all races and ages. If you're a patient arriving here for the first time, we want you to know that you are not alone in your struggle, and we'd love…

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The Pheo Para Project | Patient stories, told by patients and their families | pheoparaproject.org Reviews
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The Pheo Para Project | Patient stories, told by patients and their families | pheoparaproject.org Reviews

https://pheoparaproject.org

You have found the Pheo Para Project, a collective effort to raise awareness about pheochromocytomas and paragangliomas -- neuroendocrine tumors which affect men and women of all races and ages. If you're a patient arriving here for the first time, we want you to know that you are not alone in your struggle, and we'd love…

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1

February | 2016 | The Pheo Para Project

https://pheoparaproject.org/2016/02

The Pheo Para Project. Patient stories, told by patients and their families. Monthly Archives: February 2016. PSA Remix: Rare Disease Day 2016. February 29, 2016. By The Pheo Para Project. In honor of #RareDiseaseDay, the Pheo Para Project has remixed the PSA we produced and distributed in late 2015 for NET Cancer Day. Like its predecessor, it is intended to serve as a point of focus for those with pheochromocytomas and paragangliomas during this time when similar conditions are in the spotlight. Feature...

2

November | 2015 | The Pheo Para Project

https://pheoparaproject.org/2015/11

The Pheo Para Project. Patient stories, told by patients and their families. Monthly Archives: November 2015. November 26, 2015. Our condolences to Erin, Julie, and their family. We are sad to report that pheo has taken another life all too soon. Stories like Lori Kozempel’s emphasize the painful reality of pheochromocytoma; we know too little and we must help patients and medical professionals learn how to diagnose early. NET #NETcancer #neuroendocrine #incaliance. November 11, 2015. Raising awareness a...

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November | 2016 | The Pheo Para Project

https://pheoparaproject.org/2016/11

The Pheo Para Project. Patient stories, told by patients and their families. Monthly Archives: November 2016. November 10, 2016. By The Pheo Para Project. Each year, we like to post the raw footage we receive from our participants along with the PSA we produce. Kari’s unedited interview with her husband is now available for viewing. And don’t forget to participate in the conversation happening on social media tomorrow. PSA: NET Cancer Day 2016. November 7, 2016. By The Pheo Para Project. Our PSA is out!

4

May | 2016 | The Pheo Para Project

https://pheoparaproject.org/2016/05

The Pheo Para Project. Patient stories, told by patients and their families. Monthly Archives: May 2016. Call for Submissions: NET Cancer Day 2016. May 13, 2016. By The Pheo Para Project. And tagged NET Cancer Day. The Pheo Para Project is officially calling for a new round of user submissions from patients as we look forward to producing our second annual NET Cancer Day PSA. If this method doesn’t work for you, contact us. And we will work with you to find a solution. What was your path to diagnosis?

5

Resources | The Pheo Para Project

https://pheoparaproject.org/resources

The Pheo Para Project. Patient stories, told by patients and their families. Ronny Allan’s Neuroendocrine Cancer Blog. Kari Dahl’s Blog, “Live: Lessons Learned from Living with a Rare Disease”. Miranda Simard’s Blog, “Pheo vs Fabulous”. One thought on “ Resources. Pingback: Today The Pheo Para Project. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your Twitter account. ( Log Out.

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The Pheo Para Project | Patient stories, told by patients and their families

The Pheo Para Project. Patient stories, told by patients and their families. You have found the Pheo Para Project, a collective effort to raise awareness about pheochromocytomas and paragangliomas — neuroendocrine tumors which affect men and women of all races and ages. The Pheo Para Project. PSA: NET Cancer Day 2016. The Pheo Para Project Will Be in Denver This Weekend! Featured This Week: Catecholamines. Featured This Week: Modern Imaging. Follow me on Twitter.

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