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PKU Adults

Other PKU websites and resources. Phenylketonuria, or PKU, is an inherited genetic disorder which can result in mental retardation if not treated from birth. Initially, the medical community believed that children with PKU could discontinue dietary treatment after their brains had stopped growing (around puberty). Many children were taken off diet only to find that the detrimental effects of their disorder continued to accumulate. Parent of child with PKU. Support for person with PKU.

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PKU Adults | pkuadults.tripod.com Reviews
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Other PKU websites and resources. Phenylketonuria, or PKU, is an inherited genetic disorder which can result in mental retardation if not treated from birth. Initially, the medical community believed that children with PKU could discontinue dietary treatment after their brains had stopped growing (around puberty). Many children were taken off diet only to find that the detrimental effects of their disorder continued to accumulate. Parent of child with PKU. Support for person with PKU.
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1 pku adults
2 traveling with pku
3 returning to diet
4 pku research
5 contact me
6 name
7 question / comment
8 relationship to pku
9 adult with pku
10 teen
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PKU Adults | pkuadults.tripod.com Reviews

https://pkuadults.tripod.com

Other PKU websites and resources. Phenylketonuria, or PKU, is an inherited genetic disorder which can result in mental retardation if not treated from birth. Initially, the medical community believed that children with PKU could discontinue dietary treatment after their brains had stopped growing (around puberty). Many children were taken off diet only to find that the detrimental effects of their disorder continued to accumulate. Parent of child with PKU. Support for person with PKU.

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pkuadults.tripod.com pkuadults.tripod.com
1

Contact Me

http://pkuadults.tripod.com/id3.html

Other PKU websites and resources. Please feel free to contact me via e-mail with any questions about PKU, or suggestions or comments to make this site better. Send an e-mail to me. Helping adults with PKU return to diet since 2000.

2

Returning to Diet

http://pkuadults.tripod.com/id11.html

Other PKU websites and resources. The decision to return to the PKU diet is a difficult one to make. Most who contemplate this decision will have been off diet for a considerable amount of time, and to say that the low phenylalanine diet requires a major alteration in lifestyle is an understatement. Some information which may help make the difficult decision to return to the PKU diet are noted below (click on title for more):. Effects of being off diet. Changes in Hair Colour. As most of the existing sup...

3

PKU Research

http://pkuadults.tripod.com/id19.html

Other PKU websites and resources. PKU is the flagship in the armada of treatable genetic disease. Dr Charles R. Scriver, Alva Professor Emeritus of Human Genetics, McGill University. And their potential to block PHE from entering the brain. A supplement called PreKUnil. It is recognized that adherence to the low-PHE diet is difficult at best, therefore research is being conducted into alternative treatments for Phenylketonuria. The most promising studies have involved.

4

Other PKU websites and resources

http://pkuadults.tripod.com/id2.html

Other PKU websites and resources. Other PKU websites and resources. On this page I have included a list of links to other web sites that provide information useful to adults with PKU who have been or are still off diet. A message board and chat facility for teens and adults with PKU. The National PKU News. National Coalition for PKU and Allied Disorders. PAHdb - McGill University's database providing up-to-date information about mutations at the phenylalanine hydroxylase locus.

5

PKU Adults

http://pkuadults.tripod.com/index.html

Other PKU websites and resources. Phenylketonuria, or PKU, is an inherited genetic disorder which can result in mental retardation if not treated from birth. Initially, the medical community believed that children with PKU could discontinue dietary treatment after their brains had stopped growing (around puberty). Many children were taken off diet only to find that the detrimental effects of their disorder continued to accumulate. Parent of child with PKU. Support for person with PKU.

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PKU Adults

Other PKU websites and resources. Phenylketonuria, or PKU, is an inherited genetic disorder which can result in mental retardation if not treated from birth. Initially, the medical community believed that children with PKU could discontinue dietary treatment after their brains had stopped growing (around puberty). Many children were taken off diet only to find that the detrimental effects of their disorder continued to accumulate. Parent of child with PKU. Support for person with PKU.

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