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Ruby's Butterfly Kisses | Share Ruby's story and help raise awareness

Darr; Skip to Main Content. Ruby's Butterfly Kisses is to share Ruby's story and spread awareness about her rare Neurodegenerative disease GM1 Gangliosidosis that has no cure. Donate now to help make Ruby's quality of life as comfortable as possible. Follow Ruby’s Story. Follow Ruby's story on Facebook for regular updates on Ruby and to help spread awareness for her rare Neurodegenerative disease. Follow Ruby on Facebook. About Ruby’s Story. Read about Ruby's story. Website by Macedon Ranges Web Design.

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Ruby's Butterfly Kisses | Share Ruby's story and help raise awareness | rubysbutterflykisses.com Reviews
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Darr; Skip to Main Content. Ruby's Butterfly Kisses is to share Ruby's story and spread awareness about her rare Neurodegenerative disease GM1 Gangliosidosis that has no cure. Donate now to help make Ruby's quality of life as comfortable as possible. Follow Ruby’s Story. Follow Ruby's story on Facebook for regular updates on Ruby and to help spread awareness for her rare Neurodegenerative disease. Follow Ruby on Facebook. About Ruby’s Story. Read about Ruby's story. Website by Macedon Ranges Web Design.
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Ruby's Butterfly Kisses | Share Ruby's story and help raise awareness | rubysbutterflykisses.com Reviews

https://rubysbutterflykisses.com

Darr; Skip to Main Content. Ruby's Butterfly Kisses is to share Ruby's story and spread awareness about her rare Neurodegenerative disease GM1 Gangliosidosis that has no cure. Donate now to help make Ruby's quality of life as comfortable as possible. Follow Ruby’s Story. Follow Ruby's story on Facebook for regular updates on Ruby and to help spread awareness for her rare Neurodegenerative disease. Follow Ruby on Facebook. About Ruby’s Story. Read about Ruby's story. Website by Macedon Ranges Web Design.

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About Ruby’s Butterfly Kisses | Ruby's Butterfly Kisses

http://rubysbutterflykisses.com/about

Darr; Skip to Main Content. About Ruby’s Butterfly Kisses. Ruby Elizabeth is a beautiful 3 year old girl who has a devastating and very rare Neurodegenerative genetic condition called GM1 Gangliosidosis Type 2. It destroys the brain cells and the spinal cord. She was rolling at 4 months, sitting at 6 months and saying ‘Dadadadad’ and ‘Nananan’. Ruby started crawling not long after that and then standing up holding the furniture Ruby even took a few steps along the couch. We then took Ruby to see Doctors ...

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Merchandise | Ruby's Butterfly Kisses

http://rubysbutterflykisses.com/merchandise

Darr; Skip to Main Content. Website by Macedon Ranges Web Design. 2017 Ruby's Butterfly Kisses.

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Links | Ruby's Butterfly Kisses

http://rubysbutterflykisses.com/links

Darr; Skip to Main Content. National Tay-Sachs and Allied Diseases Association]. Jeans for Genes Day. Website by Macedon Ranges Web Design. 2017 Ruby's Butterfly Kisses.

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Portfolio | Macedon Ranges Web Design

http://www.mrwebdesign.com.au/portfolio

Please take a moment to view just a handful of the previous websites we have had the privilege to work on. SportsNews.com.au Website Design. The SportsNews.com.au website was a fun project to work on. The client required their previous website to be redesigned with a focus on their affiliate marketing advertising. During the design we had a big focus on making this website as mobile-friendly as possible with a large percent of the traffic being on mobile devices. This was a special project to work on.

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Connect – Cure GM1 Foundation

http://curegm1.org/connect-2

Non-profit foundation dedicated to find a treatment and cure for GM1 Gangliosidosis. About Cure GM1 Foundation. The internet is an amazing resource to families with rare diseases. There are many wonderful families who support each other. Connect to others and learn more about those affected by GM1. Join the Facebook Gangliosidosis Group. Fill out the Cure GM1 Foundation Registry. Read about the rare and strong children affected by GM1:. A Cure for Clara. A Future for Bo. Ruby’s Butterfly Kisses. On Cure ...

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Ruby's Butterfly Kisses | Share Ruby's story and help raise awareness

Darr; Skip to Main Content. Ruby's Butterfly Kisses is to share Ruby's story and spread awareness about her rare Neurodegenerative disease GM1 Gangliosidosis that has no cure. Donate now to help make Ruby's quality of life as comfortable as possible. Follow Ruby’s Story. Follow Ruby's story on Facebook for regular updates on Ruby and to help spread awareness for her rare Neurodegenerative disease. Follow Ruby on Facebook. About Ruby’s Story. Read about Ruby's story. Website by Macedon Ranges Web Design.

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