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What is Scleromyxedema?
http://www.scleromyxedema.com/What_is_Scleromyxedema_.html
The abbreviation most often used used for scleromyxedema in the support groups is SMX. Is a rare connective tissue disorder. A person with scleromyxedema will. Thickening and hardening of the skin along with papules which are small. Bumps The progressive thickening may cause the person to lose. In some areas, such as their hands or the opening of their mouth. Scleromyxedema can also become. Systematic and effect areas such as the heart and lungs.
Home Page
http://www.scleromyxedema.com/Home_Page.html
Welcome to Scleromyxedema.com. Hi, my name is Bonnie and I suffer from a rare disease called Scleromyxedema. I created this website as a central hub where people who have this disease can come for information and support. We currently have two support groups with over 100 members. The first group is a Yahoo based email Scleromyxedema support group. The second group is a Facebook Scleromyxedema support group. Both groups are private closed groups and are subject to approval by a moderator before joining.
Case Studies
http://www.scleromyxedema.com/Case_Studies.html
Scleromyxedema, A Case Series Highlighting Long-term Outcomes of Treatment With Intravavenous Immuoglobulin (IVIG). By Marissa Blum, MD, Fredrick M. Wigley, MD, and Laura K. Hummers, MD. Treatment of Scleromyexedema and the Dematoneuro Syndrome With Intravenous Immunoglobulin. By Jeanmarie B. Rey, BA, and Rebecca B. Luria, MD. Intravenous Immuoglobulins Control Scleromyxedema. By A Righi, F Schiavon, S Jablonska, A Doria, M Blasczyk, R Rondinone, S Todesco, M Matucci Cerinic.
Useful Links
http://www.scleromyxedema.com/Useful_Links.html
NORD (National Organization For Rare Disorders). NORD is a federation of voluntary health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Find out about NORD's financial assistance program to help patients receive their medications, at this link. IG Living (Immune Golbulin Community).
My Story
http://www.scleromyxedema.com/My_Story.html
I developed Scleromyxedema in 2006. It started after I had had some flu-like symptoms. I developed an itching and burning sensation on my right jaw line. This spread to my whole face and It was so uncomfortable that I had to sleep with a fan blowing on my face. Right now, I'm doing well receiving IVig infusions every 8 weeks. My Doctor is probably the #1 specialist in the.
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scleroma.com
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FLESSIMETRO PER PROVE DI CARICO TECNIX FRECCIAFLEX CORSA 30mm. NUOVO FLESSIMETRO TECNIX FRECCIA FLEX Il Flessimetro TECNIX FLEXFRECCIA è uno Strumento progettato e costruito dall’esperienza di Allemano Instruments è al 100% Made in Italy. Gli oltre 150 anni di lavoro nel settore ci hanno portato a migliorare il classico flessimetro in un. Euro; 315,00. Euro; 299,00 IVA. DuRo SCLEROMETRO TECNIX DuRo 100% Made in Italy. Euro; 384,00. Euro; 365,00 IVA. Euro; 815,00. Euro; 549,00 IVA. Costruito e testato da ...
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FLESSIMETRO PER PROVE DI CARICO TECNIX FRECCIAFLEX CORSA 30mm. NUOVO FLESSIMETRO TECNIX FRECCIA FLEX Il Flessimetro TECNIX FLEXFRECCIA è uno Strumento progettato e costruito dall’esperienza di Allemano Instruments è al 100% Made in Italy. Gli oltre 150 anni di lavoro nel settore ci hanno portato a migliorare il classico flessimetro in un. Euro; 315,00. Euro; 299,00 IVA. DuRo SCLEROMETRO TECNIX DuRo 100% Made in Italy. Euro; 384,00. Euro; 365,00 IVA. Euro; 815,00. Euro; 549,00 IVA. Costruito e testato da ...
Home Page
Welcome to Scleromyxedema.com. Hi, my name is Bonnie and I suffer from a rare disease called Scleromyxedema. I created this website as a central hub where people who have this disease can come for information and support. We currently have two support groups with over 100 members. The first group is a Yahoo based email Scleromyxedema support group. The second group is a Facebook Scleromyxedema support group. Both groups are private closed groups and are subject to approval by a moderator before joining.
Scleromyxedema.net
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