shesnotcontagious.blogspot.com

She's not contagious...really

Sunday, April 27, 2014. And so here we are. I know it's been a week since we've been home. I'd like to say we were able to sit back and relax but that has not been the case. I didn't update for the week for a couple reasons, was busy, busy, busy, had to speak with my family first about some findings, and wanted to meet with her PCP to discuss the results and where we go from here. Now on to where we are at. The collagen in connective tissue helps tissues resist deformation. Collagen is an important c...

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She's not contagious...really | shesnotcontagious.blogspot.com Reviews

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Sunday, April 27, 2014. And so here we are. I know it's been a week since we've been home. I'd like to say we were able to sit back and relax but that has not been the case. I didn't update for the week for a couple reasons, was busy, busy, busy, had to speak with my family first about some findings, and wanted to meet with her PCP to discuss the results and where we go from here. Now on to where we are at. The collagen in connective tissue helps tissues resist deformation. Collagen is an important c...

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She's not contagious...really | shesnotcontagious.blogspot.com Reviews

https://shesnotcontagious.blogspot.com

Sunday, April 27, 2014. And so here we are. I know it's been a week since we've been home. I'd like to say we were able to sit back and relax but that has not been the case. I didn't update for the week for a couple reasons, was busy, busy, busy, had to speak with my family first about some findings, and wanted to meet with her PCP to discuss the results and where we go from here. Now on to where we are at. The collagen in connective tissue helps tissues resist deformation. Collagen is an important c...

INTERNAL PAGES

shesnotcontagious.blogspot.com

1

She's not contagious...really: Cuddles...

http://shesnotcontagious.blogspot.com/2014/04/cuddles.html

Wednesday, April 9, 2014. After that she had the pulmonary exercise test done. This is done by hooking her to an EKG, blood pressure cuff, pulse ox on her forehead and then the best part, a face mask that measures the make-up of every breath she takes. Did I mention this is all done on a treadmill as it inclines every 20-30 seconds? After they finally come in and announce the amount of labs they are taking there is a double take from both the CVC nurses. Did they just say 74 mL's? April 9, 2014 at 7:46 PM.

2

She's not contagious...really: I don't want to go...

http://shesnotcontagious.blogspot.com/2014/04/i-dont-want-to-go.html

Thursday, April 3, 2014. I don't want to go. Forever can never be long enough for me to feel like I've had long enough with you.". It's not a song about kids but it just happens to be the song that came on the radio right as I was pulling this up to type. Made me think of her. I should be packing. I should be doing something. Some days will be better and I know this trip will be providing us answers but I struggle with at what cost? T minus 2 days. Subscribe to: Post Comments (Atom). My crazy normal life.

3

She's not contagious...really: Coming to an end...

http://shesnotcontagious.blogspot.com/2014/04/coming-to-end.html

Friday, April 18, 2014. Coming to an end. While th is trip is now coming to an end in a lot of ways we are just starting. There's so much information to process and so many new things to learn. This is what the last set of testing was showing. What it means escapes me at this point and apparently it's going to take a few weeks until we know. This went on for 7 hours almost and the doctor has to look over every section of it and find the patterns within it as well as the randomness of it. Rare Lung Diseas...

4

She's not contagious...really: March 2014

http://shesnotcontagious.blogspot.com/2014_03_01_archive.html

Monday, March 31, 2014. With this being said, Saturday morning at 6am we will be on our way to Cincinnati Children's Hospital until at least the 20th. She is seeing EVERY specialty this time and having many, many, procedures, and surgeries. Some of the testing is extremely invasive and complicated but what we can learn from it might help prevent even more surgeries. Is her gut not getting them? Is the gut getting them but not able to do anything about it? Tuesday, March 11, 2014. Sunday, March 9, 2014.

5

She's not contagious...really: And so here we are...

http://shesnotcontagious.blogspot.com/2014/04/and-so-here-we-are.html

Sunday, April 27, 2014. And so here we are. I know it's been a week since we've been home. I'd like to say we were able to sit back and relax but that has not been the case. I didn't update for the week for a couple reasons, was busy, busy, busy, had to speak with my family first about some findings, and wanted to meet with her PCP to discuss the results and where we go from here. Now on to where we are at. The collagen in connective tissue helps tissues resist deformation. Collagen is an important c...

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rarelungmom.blogspot.com

life with a rare lung diseased child: shopping with a lung disease...yuck

http://rarelungmom.blogspot.com/2008/07/shopping-with-lung-diseaseyuck.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Tuesday, July 29, 2008. Shopping with a lung disease.yuck. By noon we were hungry. After lunch Julia just became so tired out. I felt bad because I had thought of bringing the oxygen but decided against it. She has been doing so well this summer and well it is a pain in the arse to haul around, even though we have one of the battery portable oxygen concentrators (Inogen One .it rocks! Babette and Robert Gierke.

rarelungmom.blogspot.com

life with a rare lung diseased child: Hike for Lung Health 2008

http://rarelungmom.blogspot.com/2008/10/hike-for-lung-health-2008.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. Hike for Lung Health 2008. Julia did an amazing job with the help from friends, family, and even people we have never even met. She was able to raise over $2,000. The Children's Interstitial Lung Disease Foundation came in 3rd place with over all funds raised. This is great news. We are so lucky to have people care about Julia the way they do. God Bless each of you. And so here we are.

rarelungmom.blogspot.com

life with a rare lung diseased child: NEHI: A Rare Diagnosis after Misdiagnosis

http://rarelungmom.blogspot.com/2008/10/nehi-rare-diagnosis-after-misdiagnosis.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. NEHI: A Rare Diagnosis after Misdiagnosis. Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative. Http:/ www.articles.complexchild.com/Oct2008/00078.html. Subscribe to: Post Comments (Atom). Help find a cure.let me breathe! Visit the chILD Foundation's website. View my complete profile. She's not contagious.really.

rarelungmom.blogspot.com

life with a rare lung diseased child: August 2008

http://rarelungmom.blogspot.com/2008_08_01_archive.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Wednesday, August 13, 2008. Well I think we set a record for how many days we can go without. Missing school. Only not the kind you would hope for. Julia made. It the first full day. BUT.apparently she fell back in her chair. And hit a desk that is behind her. She did not tell the teacher nor. Did she go to the nurse. Yet at around 5pm on Monday she keeps. All kinds of questions, did she fall? Did she get hit?

rattles-ba-lifeanditsdramas.blogspot.com

brittle asthma life and dramas: Visitors :)

http://rattles-ba-lifeanditsdramas.blogspot.com/2011/11/visitors.html

Monday, November 21, 2011. Its been quite lonely the last few weeks waiting for physiotherapy, stuck on bedcare no company except phone calls and carers, so i had a huge surprise today when two great friends came to visit on the train :). After a couple of hours to chatter and laugh, we had a take away and enjoyed catching up! Ive missed that so much. All my love to all - will post again soon. November 24, 2011 at 4:15 AM. Rattles, i miss you! Hugs and kisses,. Subscribe to: Post Comments (Atom). I love ...

rattles-ba-lifeanditsdramas.blogspot.com

brittle asthma life and dramas: February 2011

http://rattles-ba-lifeanditsdramas.blogspot.com/2011_02_01_archive.html

Saturday, February 12, 2011. Words cannot say enough. I went to the celebration of life ceromony which was full of sorrow and. Laughter in equal measures. I miss her. Nothing can make it alright - i felt so deeply for her children similar ages to myself- I couldn't beat to loose my mum and I cannot begin to understand the deep pain and loss that her four lovely children will be feeling! It's taken a while to write this post! Rest in peace and breathe easy. xx. Subscribe to: Posts (Atom). A View From Above.

rarelungmom.blogspot.com

life with a rare lung diseased child: October 2008

http://rarelungmom.blogspot.com/2008_10_01_archive.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. NEHI: A Rare Diagnosis after Misdiagnosis. Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative. Http:/ www.articles.complexchild.com/Oct2008/00078.html. Julia is looking forward to Halloween. She still hasn't made up her mind on her costume. She is either going as Cinderella again or going as a Lion. Grant Hall fro...

rarelungmom.blogspot.com

life with a rare lung diseased child: Julia's health update

http://rarelungmom.blogspot.com/2008/10/julias-health-update.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. At Julia's teacher's request we have added a mid-morning snack. She has been doing much better eating every 3 hrs or so. She has breakfast at 7am, then snack at 10am. Lunch is at 12 and after school snack is at 3:30. Dinner is at 6pm and night time snack is at 8:30pm. She is maintaining her weight(even gained a pound), and has grown in height. So that is all good. And so here we are.

rarelungmom.blogspot.com

life with a rare lung diseased child: my back hurts

http://rarelungmom.blogspot.com/2008/08/my-back-hurts.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Wednesday, August 13, 2008. Well I think we set a record for how many days we can go without. Missing school. Only not the kind you would hope for. Julia made. It the first full day. BUT.apparently she fell back in her chair. And hit a desk that is behind her. She did not tell the teacher nor. Did she go to the nurse. Yet at around 5pm on Monday she keeps. All kinds of questions, did she fall? Did she get hit?

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She's not contagious...really

Sunday, April 27, 2014. And so here we are. I know it's been a week since we've been home. I'd like to say we were able to sit back and relax but that has not been the case. I didn't update for the week for a couple reasons, was busy, busy, busy, had to speak with my family first about some findings, and wanted to meet with her PCP to discuss the results and where we go from here. Now on to where we are at. The collagen in connective tissue helps tissues resist deformation. Collagen is an important c...

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