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My Life as I "StandUP2ME" + OI/POTS

My Life as I "StandUP2ME" OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail." Ralph Waldo Emerson. Translate to . with one click. Thursday, March 22, 2012. 125 ME/cfs: Emily's Last words RIP. Well folks, That "Invisible Illness" ME/cfs has just claimed another loving soul. Another that fought long and hard and did her share of Advocacy. Please share this with as many as you can that think this illness is STILL "All In Our Heads.". NO ONE is exempt. 8220;My na...

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My Life as I "StandUP2ME" + OI/POTS | standup2me.blogspot.com Reviews
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My Life as I StandUP2ME OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail. Ralph Waldo Emerson. Translate to . with one click. Thursday, March 22, 2012. 125 ME/cfs: Emily's Last words RIP. Well folks, That Invisible Illness ME/cfs has just claimed another loving soul. Another that fought long and hard and did her share of Advocacy. Please share this with as many as you can that think this illness is STILL All In Our Heads.. NO ONE is exempt. 8220;My na...
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My Life as I "StandUP2ME" + OI/POTS | standup2me.blogspot.com Reviews

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My Life as I "StandUP2ME" OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail." Ralph Waldo Emerson. Translate to . with one click. Thursday, March 22, 2012. 125 ME/cfs: Emily's Last words RIP. Well folks, That "Invisible Illness" ME/cfs has just claimed another loving soul. Another that fought long and hard and did her share of Advocacy. Please share this with as many as you can that think this illness is STILL "All In Our Heads.". NO ONE is exempt. 8220;My na...

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My Life as I "StandUP2ME" + OI/POTS: #119~ Urgent: November CFSAC concerns:

http://standup2me.blogspot.com/2011/10/119-urgent-november-cfsac-concerns.html

My Life as I "StandUP2ME" OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail." Ralph Waldo Emerson. Translate to . with one click. Tuesday, October 18, 2011. 119 Urgent: November CFSAC concerns:. Occupy the CFSAC via EMAILs. Subject: Urgent November CFSAC concerns:. B) Thousands of us have UNITED over the past 2-3 years via watching the CFSAC meetings LIVE online and Sharing the info. Now they are Stating this. NOT ONE WORD ABOUT US WITHOUT US"! If you have ME...

2

My Life as I "StandUP2ME" + OI/POTS: #123~ Email- FaceTheNation, ~ ASAP Please

http://standup2me.blogspot.com/2011/12/123-email-facethenation-asap-please.html

My Life as I "StandUP2ME" OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail." Ralph Waldo Emerson. Translate to . with one click. Sunday, December 11, 2011. 123 Email- FaceTheNation, ASAP Please. How would YOU like being referred to as "a descriptive phrase in a political discussion that has absolutley NOTHING to do with your. Please think about it. You or your child have now been reduced to an adjectivce in the gramatical lexicon of this society. Http:/ www&...

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My Life as I "StandUP2ME" + OI/POTS: #121~ CFSAC this week-Please Read~ THx♥

http://standup2me.blogspot.com/2011/11/121-cfsac-this-week-please-read-thx.html

My Life as I "StandUP2ME" OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail." Ralph Waldo Emerson. Translate to . with one click. Sunday, November 6, 2011. 121 CFSAC this week-Please Read THx♥. Please Share and Post Widely. CFSAC Demonstration NIH and CDC. ME/CFS Patients Advocate for Patients. Tuesday at 8:00am - Wednesday at 5:00pm. Holiday Inn Hotel Washington-Capitol. 550 C Street, S.W. ME/CFS Patients Advocate for Patients :. Afauci@niaid.nih.gov,. Let t...

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My Life as I "StandUP2ME" + OI/POTS: March 2012

http://standup2me.blogspot.com/2012_03_01_archive.html

My Life as I "StandUP2ME" OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail." Ralph Waldo Emerson. Translate to . with one click. Thursday, March 22, 2012. 125 ME/cfs: Emily's Last words RIP. Well folks, That "Invisible Illness" ME/cfs has just claimed another loving soul. Another that fought long and hard and did her share of Advocacy. Please share this with as many as you can that think this illness is STILL "All In Our Heads.". NO ONE is exempt. 8220;My na...

5

My Life as I "StandUP2ME" + OI/POTS: October 2011

http://standup2me.blogspot.com/2011_10_01_archive.html

My Life as I "StandUP2ME" OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail." Ralph Waldo Emerson. Translate to . with one click. Tuesday, October 18, 2011. 119 Urgent: November CFSAC concerns:. Occupy the CFSAC via EMAILs. Subject: Urgent November CFSAC concerns:. B) Thousands of us have UNITED over the past 2-3 years via watching the CFSAC meetings LIVE online and Sharing the info. Now they are Stating this. NOT ONE WORD ABOUT US WITHOUT US"! If you have ME...

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Putting Out Fires And Coming Up Roses — ChronicHealing.com

http://chronichealing.com/putting-out-fires-and-coming-up-roses

Helping women with chronic illnesses. Putting Out Fires And Coming Up Roses. This is the longest span of time there has ever been between blog posts here. I have been really busy offline “putting out fires”. I just wanted to make an appearance here so that no one thinks I have abandoned my blog. The flare-ups of various conditions that I mentioned previously. Are ongoing. So, things are just challenging at the moment but I will try to get back into the swing of things as soon as I can. I had a doctor&#82...

chronichealing.com chronichealing.com

Fibromyalgia: Remarkably Predictable! — ChronicHealing.com

http://chronichealing.com/fibromyalgia-remarkably-predictable

Helping women with chronic illnesses. Sometimes I feel as if I sound like a broken record. I’ll try to explain what I mean in this post. After weeks of trying to summon the energy (and find the time) to write something here, I find myself picking a familiar topic: fibromyalgia. Currently, I’m experiencing a flare-up of it. As any fibromyalgia patient can attest, this is not a pleasant state. Long to get back to where I was before the trip? 8221;). Here’s where my “amnesia” comes in&...Once I finally real...

chronichealing.com chronichealing.com

Endometriosis Patients Deserve Better — ChronicHealing.com

http://chronichealing.com/endometriosis-patients-deserve-better

Helping women with chronic illnesses. Endometriosis Patients Deserve Better. Just when you thought it couldn’t get any worse, it does. One of my readers was kind enough to draw my attention to a “study”. It was published by the fine folks who brought the world the article that I referenced in my last post. (See this post about a “study” on endometriosis that many people found objectionable. And this other article was published in. University of Milan School of Medicine. I believe these “studies&#82...

livingwithchronicfatiguesyndrome.wordpress.com livingwithchronicfatiguesyndrome.wordpress.com

My ME Treatments- A January 2014 Update | Living With Chronic Fatigue Syndrome

https://livingwithchronicfatiguesyndrome.wordpress.com/2014/01/29/my-me-treatments-a-january-2014-update

Living With Chronic Fatigue Syndrome. Just another WordPress.com weblog. Laquo; One Thousand Paper Cranes. My ME Treatments- An August 2014 update. My ME Treatments- A January 2014 Update. January 29, 2014 by cfssufferer. A lengthy period of time has again passed between my blog entries. This article will hopefully inform readers of the different treatments I have trialled over the past few months. The Neuroimmune Disease Alliance funded a trial of Moringa Oleifera on ME/CFS patients, to be run by the Op...

livingwithchronicfatiguesyndrome.wordpress.com livingwithchronicfatiguesyndrome.wordpress.com

Sulforaphane, Nicotine Gum, Curcumin and VNS | Living With Chronic Fatigue Syndrome

https://livingwithchronicfatiguesyndrome.wordpress.com/2015/02/01/sulforaphane-nicotine-gum-curcumin-and-vns

Living With Chronic Fatigue Syndrome. Just another WordPress.com weblog. Laquo; My health- A 2015 Update. Ten years of M.E. Sulforaphane, Nicotine Gum, Curcumin and VNS. February 1, 2015 by cfssufferer. Sulforaphane is a compound found in high doses within cruciferous vegetables, most notably broccoli sprouts. Sulforaphane may benefit ME patients due to:. Protecting against oxidative stress. A study published in late 2014. I started taking broccoli extract capsules on the 7. Studies have shown that nicot...

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Oxymatrine | Living With Chronic Fatigue Syndrome

https://livingwithchronicfatiguesyndrome.wordpress.com/2009/11/03/oxymatrine

Living With Chronic Fatigue Syndrome. Just another WordPress.com weblog. Laquo; My Abnormal Blood Tests. November 3, 2009 by cfssufferer. The White Tiger brand contains 200mg of oxymatrine per tablet. My dosing structure is flexible based on any reaction to the oxymatrine however at the moment stands at:. 100mg each day for 2 weeks. The tablet is to be taken with water before or with meals. 100mg 2x a day for 2 weeks. 200mg at am and 100mg at pm for 2 weeks. I must stress that it is imperative to slowly ...

livingwithchronicfatiguesyndrome.wordpress.com livingwithchronicfatiguesyndrome.wordpress.com

An ME Update- August 2013 | Living With Chronic Fatigue Syndrome

https://livingwithchronicfatiguesyndrome.wordpress.com/2013/08/05/an-me-update-august-2013

Living With Chronic Fatigue Syndrome. Just another WordPress.com weblog. Laquo; Nimodipine- The Results. One Thousand Paper Cranes. An ME Update- August 2013. August 5, 2013 by cfssufferer. It has been a lengthy period since my last blog. This entry will attempt to outline my ME related journey from the past 6 months. In a previous blog entry here. There exists a plethora of ME treatments that I have lined up and ready to trial. The one prohibiting factor for testing these treatments involves the wei...

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June | 2015 | Living With Chronic Fatigue Syndrome

https://livingwithchronicfatiguesyndrome.wordpress.com/2015/06

Living With Chronic Fatigue Syndrome. Just another WordPress.com weblog. Archive for June, 2015. Ten years of M.E. On June 23, 2015 13 Comments. Today marks an anniversary for me with this illness. A decade ago to the day, my first symptoms emerged, although they were relatively mild at the time. This is my journey…. I have spent the last ten years of my life living with Myalgic Encephalomyelitis. Specialised testing ascertained that the blood wasn’t flowing freely around my brain and my immune system wa...

chronichealing.com chronichealing.com

Lesson Learned: The Importance Of Pacing — ChronicHealing.com

http://chronichealing.com/lesson-learned-the-importance-of-pacing

Helping women with chronic illnesses. Lesson Learned: The Importance Of Pacing. At the risk of sounding like a broken record, things have been overwhelmingly busy for me in recent months. I have been a ‘busy bee’ to the point that I have really tested my limits. So, please continue to bear with me as I make adjustments to how I divide my time between my “online world” and my “offline world”. In addition to coping with flare-ups (especially of fibromyalgia. But I am still in physical therapy working on ge...

chronichealing.com chronichealing.com

March: Endometriosis Awareness Month — ChronicHealing.com

http://chronichealing.com/march-endometriosis-awareness-month

Helping women with chronic illnesses. March: Endometriosis Awareness Month. This post was written by Jeanne at http:/ chronichealing.com. If you’re like me, you find online shopping a helpful alternative. Thank you for supporting my blog by using my Amazon ads. I appreciate your support! New to blog commenting? Just click “comments” below post. (If you set up a Gravatar. Your picture will show when you comment). Reading: March: Endometriosis Awareness Month. 030713 at 4:41 pm }. 030713 at 5:08 pm }.

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My Life as I "StandUP2ME" + OI/POTS

My Life as I "StandUP2ME" OI/POTS. Do not go where the path may lead, go instead where there is no path and leave a trail." Ralph Waldo Emerson. Translate to . with one click. Thursday, March 22, 2012. 125 ME/cfs: Emily's Last words RIP. Well folks, That "Invisible Illness" ME/cfs has just claimed another loving soul. Another that fought long and hard and did her share of Advocacy. Please share this with as many as you can that think this illness is STILL "All In Our Heads.". NO ONE is exempt. 8220;My na...

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