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Take nothing for granted | Living with Sotos Syndrome and Autism

Living with Sotos Syndrome and Autism

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Take nothing for granted | Living with Sotos Syndrome and Autism | takenothingforgranted.wordpress.com Reviews
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Living with Sotos Syndrome and Autism
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6 missing in action
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Take nothing for granted | Living with Sotos Syndrome and Autism | takenothingforgranted.wordpress.com Reviews

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Living with Sotos Syndrome and Autism

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Meet T | Take nothing for granted

https://takenothingforgranted.wordpress.com/meet-t

Take nothing for granted. Living with Sotos Syndrome and Autism. The journey to here. What can I say about T? He is 6 years old. He’s the size of a 9 year old. He wears size 3.5 shoes (UK) and age 9-10 clothes. He’s my blond haired blue eyed boy. He has a smile that melts my heart but a temper that reduces me to tears frequently. He’s got issues with speech, and only in the last few months has started talking with purpose, but his speech is often quite difficult to understand. He is both a mammy’s ...

2

The journey to here | Take nothing for granted

https://takenothingforgranted.wordpress.com/the-journey-to-here

Take nothing for granted. Living with Sotos Syndrome and Autism. The journey to here. The journey to here. So after 4 months of waiting, we got the results. The geneticist didn’t beat about the bush. “T has Sotos syndrome”. And if you Google ‘Sotos’ you get some resources which are helpful and some which are very much out of date. But what you find are that there a lots of people living and enjoying their life even though they have Sotos. One thought on “ The journey to here. October 23, 2013 at 5:50 PM.

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Sotos syndrome | Take nothing for granted

https://takenothingforgranted.wordpress.com/sotos-syndrome

Take nothing for granted. Living with Sotos Syndrome and Autism. The journey to here. We are lucky T has a definitive diagnosis. We know exactly what the issue is. It’s a mutation on the NSD1 gene. The following is a description of sotos on Wikipedia – slightly edited by me as I dislike terms such as retardation. I prefer learning disability or development delay. You can read the full wikipedia version here. Incidence is approximately 1 in 14,000 births. Sotos syndrome is not a life-threatening disorder ...

4

Helping to write | Take nothing for granted

https://takenothingforgranted.wordpress.com/2015/04/09/helping-to-write

Take nothing for granted. Living with Sotos Syndrome and Autism. The journey to here. April 9, 2015. About 18 months ago I wrote a couple of blog posts about to helping T to write. To be honest we haven’t made a great deal of progress but he does know all his letters and with a bit of help holding a pen can write words. It’s not neat and it’s barely legible but it’s writing. So we bought these…. I just tried them with T but and he did seem pleased to use them to hold the pen – although he was less ...

5

Missing in action | Take nothing for granted

https://takenothingforgranted.wordpress.com/2015/08/13/missing-in-action

Take nothing for granted. Living with Sotos Syndrome and Autism. The journey to here. August 13, 2015. It’s been a while since I blogged. In fact the last time I blogged was the day before I started my new job which was around 10 weeks ago. Wow! T’s future is for him to shape. So I am currently deciding what to do. It maybe that I will remove any really personal posts and leave the ones where there are activities or products that I have found useful. August 13, 2015. My letter to Jet2 holidays →. Strengt...

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Do You Use Vitamins To Supplement Your Child’s Diet? | wife2dondi

https://wife2dondi.wordpress.com/2013/07/05/do-you-use-vitamins-to-supplement-your-childs-diet

Do You Use Vitamins To Supplement Your Child’s Diet? We have been on the gluten, dairy and soy free diet for many years. We use many supplements in order to ensure that we get what our bodies need daily. My son, who is now 15 and growing quickly; has always swallowed pills of any size and shape easily. In fact, he would swallow ALL of his pills dry if we let him. 🙂. The B – Complex helps to tame your anxiety/stress. I don’t know anyone who can’t use this vitamin! Last but not least, we all take multi-vi...

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Check this out, my friend | wife2dondi

https://wife2dondi.wordpress.com/2013/06/25/check-this-out-my-friend

Check this out, my friend. I’ve been trying different ways online to earn money and I found this company a. Little over a year ago. This is not a get rich quick business but a slow and steady. If you have 1 hour a day or more to spend on a home based business; than. It’s free to get started and trained so it won’t hurt you to check it. Also found that it’s ready when I’m ready…which is at all hours of the day. Knows when my son will need me next. So check it out and let me know. God bless you, my friend!

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July | 2013 | wife2dondi

https://wife2dondi.wordpress.com/2013/07

Do You Use Vitamins To Supplement Your Child’s Diet? We have been on the gluten, dairy and soy free diet for many years. We use many supplements in order to ensure that we get what our bodies need daily. My son, who is now 15 and growing quickly; has always swallowed pills of any size and shape easily. In fact, he would swallow ALL of his pills dry if we let him. 🙂. The B – Complex helps to tame your anxiety/stress. I don’t know anyone who can’t use this vitamin! Last but not least, we all take multi-vi...

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Take nothing for granted | Living with Sotos Syndrome and Autism

Take nothing for granted. Living with Sotos Syndrome and Autism. The journey to here. It’s been a while since I blogged. In fact the last time I blogged was the day before I started my new job which was around 10 weeks ago. Wow! I’ve been considering how to move forward with this blog as now T is getting older I am not so sure posting about him is…. Continue reading →. Anxiety turned into action. A great trip to Glasgow Science Centre, with our ASD, ADHD son. Our Center Parcs Adventure. About 18 months a...

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