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FSGS Sucks

FSGS, kidney disease, dialysis, peritoneal dialysis, PD, HD, hemodialysis, CKD, chronic illness, kidney, kidney transplant, transplant.

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FSGS Sucks | fsgssucks.blogspot.com Reviews
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FSGS, kidney disease, dialysis, peritoneal dialysis, PD, HD, hemodialysis, CKD, chronic illness, kidney, kidney transplant, transplant.
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FSGS Sucks | fsgssucks.blogspot.com Reviews

https://fsgssucks.blogspot.com

FSGS, kidney disease, dialysis, peritoneal dialysis, PD, HD, hemodialysis, CKD, chronic illness, kidney, kidney transplant, transplant.

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1

FSGS Sucks: 2015-07-05

https://fsgssucks.blogspot.com/2015_07_05_archive.html

Thursday, July 9, 2015. I have no catchy title.just a lotta whine. I'm not feeling better, and I'm losing patience. I'm sluggish both physically and mentally.what I wouldn't do for a burst of energy. I may have a smile on my face, but in my head I'm thinking, "fake it till you make it". Links to this post. Wednesday, July 8, 2015. The frustration of weight control. I have become acutely aware of my weight since I started PD. Every morning when I wake up, the first thing I do is go to the bathroom and...

2

FSGS Sucks: Tick tock goes the clock

https://fsgssucks.blogspot.com/2015/07/tick-tock-goes-clock.html

Thursday, July 16, 2015. Tick tock goes the clock. I feel that I have experienced every single second that has passed since my great news 3 weeks ago. I'm still thrilled, but now I'm READY for the next step. I was finally able to get in contact with my donor coordinator this week (she was out on vacation) and she's had a chance to speak with the transplant nephrologist regarding my labs, and it doesn't sound like they were very good. As I understand it, a nephrectomy is probably a 2-month recovery. T...

3

FSGS Sucks: 2015-07-26

https://fsgssucks.blogspot.com/2015_07_26_archive.html

Thursday, July 30, 2015. 1st dose of Ritixumab. The process has OFFICIALLY started! Yesterday, I went to Mayo to have my first dose of Rituximab. We left the house at 5:00am (which was PAINFUL) but made it to Mayo at 7:00am for labs. See how happy we are to be awake? Benadryl is awesome. It makes me SO sleepy. Neither was he when he got to eat the leftovers :). The most exciting thing out the infusion was that I couldn't do dialysis last night. A night of FREEDOM! Unfortunately, I kinda need dialysis for...

4

FSGS Sucks: 2015-05-17

https://fsgssucks.blogspot.com/2015_05_17_archive.html

Wednesday, May 20, 2015. The donor coordinator for Mayo Clinic called Adam today, and let him know that they want him to repeat the blood pressure monitoring in 30 days, which is June 19th. So it's "sort of" an answer for now, I guess. I'm not going to go on and on about what I feel today, because frankly, it doesn't matter. There is absolutely nothing I can do to better this particular part of my situation except for wait, which just sucks. Links to this post. Monday, May 18, 2015. Adam turned in his bl...

5

FSGS Sucks: Kidney by Halloween!!!!

https://fsgssucks.blogspot.com/2015/07/kidney-by-halloween.html

Tuesday, July 21, 2015. I had a very early blood draw at Mayo this morning (7:30am), so I had to leave the house at 5:30am, which means I went to bed at 7:30pm last night ;) Even arriving at 7:20am, I ran into a line getting into the parking garage! I'm pretty sure it's mirrored glass and they could't see me, but I still felt so guilty sticking the phone in their face that I abandoned those pictures :) I hung out up here, answered some emails, watched some Hulu and HBO (thanks Rebecca! I started to get S...

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lillaloppanphotography.blogspot.com lillaloppanphotography.blogspot.com

Lilla Loppan Photography: A little bit about me :)

http://lillaloppanphotography.blogspot.com/p/about-me.html

A little bit about me :). Hi, my name is Jenn Trunk, and I love taking pictures.all kinds of pictures. But I think the thing that draws me to photography is capturing life's little moments. This became more evident to me after I had a child of my own. I've taken THOUSANDS of photos of her (I'm not kidding! Here's a little background info on the name "Lilla Loppan" (pronounced "Lee-la Low-pahn"):. And my blog about my kidney disease can be found here. Can't wait to get to know you! Subscribe in a reader.

thebadbadbeans.blogspot.com thebadbadbeans.blogspot.com

The Bad Bad Beans: The Zero Club

http://thebadbadbeans.blogspot.com/2012/05/zero-club.html

The Bad Bad Beans. Thursday, May 3, 2012. Now onward to the day I can throw that box away. May 3, 2012 at 7:19 PM. Thats really great news! Careful not to wean off too quickly. ask the other girls- from what Ive read and heard from them, the biggest factor of success in staying in remission seems to be how slow you come off the pred. 4 weeks seems really fast! Even for just 20 mg! May 3, 2012 at 7:33 PM. Subscribe to: Post Comments (Atom). Home, sweet home. I had my first follow up visit today since bein...

2kidneybeans.blogspot.com 2kidneybeans.blogspot.com

2 kidney beans: We Moved!

http://2kidneybeans.blogspot.com/2014/11/we-moved.html

2kidneybeans is my blog about life with kidney disease, lupus, and APS. Follow along, life is interesting. Tuesday, November 18, 2014. September and October were crazy busy! So we called our realtor and started the process to sign a lease. The very next week the tenants in the home we rent out informed us that they were moving out. Talk about bad timing! Since we were not able to get out of the lease we decided to try and get our house in town rented, our little house sold, and go ahead and move. There a...

2kidneybeans.blogspot.com 2kidneybeans.blogspot.com

2 kidney beans: Pre-Baby Making Appointment

http://2kidneybeans.blogspot.com/2012/10/pre-baby-making-appointment.html

2kidneybeans is my blog about life with kidney disease, lupus, and APS. Follow along, life is interesting. Sunday, October 28, 2012. At lunch, before the appointment. We talked about so many things, and before we knew it, we had been in his office for an entire hour. We went over what happened during our last pregnancy with Malakai and what we hope will happen next pregnancy. I will try to update you in the most easy to understand format. On our way there. Found on pintrest. Source unknown. This week bab...

2kidneybeans.blogspot.com 2kidneybeans.blogspot.com

2 kidney beans: Nursery Reveal

http://2kidneybeans.blogspot.com/2013/07/nursery-reveal.html

2kidneybeans is my blog about life with kidney disease, lupus, and APS. Follow along, life is interesting. Monday, July 1, 2013. I've had a lot of fun decorating the nursery as we anticipate the arrival of Baby Girl. Since we started trying to have a baby four years ago, I already had several big items that we needed. Here's a list of most of the items in the nursery, where we got them, and how much we paid. Crib- given to me from my sister. Mattress- Ordered on Amazon, $30. Blankets- made by my Aunt.

2kidneybeans.blogspot.com 2kidneybeans.blogspot.com

2 kidney beans: Nursery Sneak Peak and 29 week update

http://2kidneybeans.blogspot.com/2013/05/nursery-sneak-peak-and-29-week-update.html

2kidneybeans is my blog about life with kidney disease, lupus, and APS. Follow along, life is interesting. Thursday, May 23, 2013. Nursery Sneak Peak and 29 week update. Here's a quick update:. She now weights nearly 3 pounds! Here is a sneak peak at the nursery:. Moses is really excited! May 23, 2013 at 8:22 PM. I know prayers work and am so glad to hear you and baby are well. Ill keep praying! May 23, 2013 at 10:36 PM. Im so pleased that you have arrived at this point safely! May 23, 2013 at 11:41 PM.

mykidneyshatemeblog.blogspot.com mykidneyshatemeblog.blogspot.com

My Kidneys Hate Me: Goodbye 2012

http://mykidneyshatemeblog.blogspot.com/2012/12/goodbye-2012.html

My Kidneys Hate Me. First kidney stones. Then infections. Now this. Monday, December 31, 2012. That is why I haven't blogged. All I've ever wanted to be in life was a mom. Never, at any point, did I think I was done having children. I knew the instant that I heard Max cry for the first time that I had to do it again. I cried the day I had my appointment with Dr. A (my MFM dr) but really have felt a lot of peace since. I've had my sad moments but I'm doing ok. Bring it on 2013! December 31, 2012 at 1:02 PM.

mykidneyshatemeblog.blogspot.com mykidneyshatemeblog.blogspot.com

My Kidneys Hate Me: "Normal"

http://mykidneyshatemeblog.blogspot.com/2013/10/normal.html

My Kidneys Hate Me. First kidney stones. Then infections. Now this. Wednesday, October 9, 2013. As of September 19th, I'm completely off all medications for my kidney disease. Wow - it feels crazy amazing! It feels NORMAL. I mean, normal 31-year-olds don't take a million pills every day, right? By the time I did labs on September 16th, I was back in remission. Im so happy you got great news! October 10, 2013 at 9:55 AM. Congratulations this is amazing! October 10, 2013 at 3:48 PM. Here is his story:.

mykidneyshatemeblog.blogspot.com mykidneyshatemeblog.blogspot.com

My Kidneys Hate Me: June 2013

http://mykidneyshatemeblog.blogspot.com/2013_06_01_archive.html

My Kidneys Hate Me. First kidney stones. Then infections. Now this. Friday, June 14, 2013. I've been waiting for you. Zero is just the most perfect, glorious number. Don't you think? Well you do if you have kidney disease and you're talkin amount of protein in the urine. And here I am, down to complete, 100% remission. My dr. honestly didn't think I'd quite get here because all of the studies on Cyclosporine have it paired with a small dose of prednisone. But I'm so grateful that I didn't hav...I'm super...

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FSGS Sucks

Transplant back to dialysis. Friday, March 2, 2018. Fistula ultrasound and all the worries, again :(. After they were removed, a totally different person came in the room with a rudimentary drawing that shows the upper part of a body, with a couple of darkened areas on the right arm. She briefly mentions the "bad news" in that there's stenosis (narrowing) in 2 separate places. Ummmmm.what? Did the surgery not work? Did they even ultrasound the right part? Where, EXACTLY, is the stenosis? I mean, fistulas...

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