jesscfs.blogspot.com
Jess' ME/CFS blog: January 2014
http://jesscfs.blogspot.com/2014_01_01_archive.html
Friday, 31 January 2014. Gastroscopy medical and Uni updates. Well I've survived my first (and hopefully last! Anybody squeamish might want to skip the next paragraph. In terms of a general medical update I've had a couple of appointments since I last updated you all and have a few more lined up. I finally saw a GI person- at last! Over the last few days I have been saying my goodbyes before leaving my university city and moving home for a while (although I will be travelling back for all my medical appo...
jesscfs.blogspot.com
Jess' ME/CFS blog: February 2014
http://jesscfs.blogspot.com/2014_02_01_archive.html
Monday, 17 February 2014. Frustration of normal results and update. Frustration of "normal" results. I've had lots of tests come back normal over the years- some I've desperately wanted to come back normal, some I've expected to come back normal, some have been unexpectedly normal and on occasions hearing 'normal' has been frustrating and disappointing. It's very difficult to be so broken whilst also currently unfixable. 'Normal' is not always nice. Well, where do I start. I'm still waiting to hear about...
jesscfs.blogspot.com
Jess' ME/CFS blog: 55 things learnt from 5.5 years ill
http://jesscfs.blogspot.com/2015/03/55-things-learnt-from-55-years-ill.html
Sunday, 1 March 2015. 55 things learnt from 5.5 years ill. What I've been through is pretty much documented on here. I've already mentioned the severe pain, the immobility, the loss of independence, the nausea that nearly resulted in tube feeding, the struggle to walk, the struggle to sit up, etc etc. The worth of a person should not be based on what they can or can't do, but who they are as a person. Every individual is important and their life, and quality of life, matters. Good times pass too, but it'...
alianoutbody.blogspot.com
AlienOutbody: Back and Forth Again
http://alianoutbody.blogspot.com/2015/08/back-and-forth-again.html
Monday, 10 August 2015. Back and Forth Again. The last few weeks here have been a little hectic! 17 August 2015 at 16:37. Oh Amy, I felt so upset for you reading this as all of the uncertainty and unknowing is so unfair, especially when youre feeling so unwell too! Lots of love,. Wwwthehollydays4.blogspot.co.uk. 1 September 2015 at 20:33. The bittersweet feeling of tests coming back normal. Hoping you get some definitive answers very soon. Subscribe to: Post Comments (Atom). View my complete profile.
alianoutbody.blogspot.com
AlienOutbody: Trip to Cromer
http://alianoutbody.blogspot.com/2015/07/trip-to-cromer.html
Friday, 17 July 2015. A few weeks ago I went along on an Elevate trip to Cromer Pier and the Henry Bloggs Musuem. It was a lovely day to be at the seaside- very nice especially as the day before and the day after it rained. Cromer is a seaside town on the North Norfolk coast, famous for having the last pier show in the UKand it's crabs, Cromer Crabs are supposed to be some of the best in the country! It's also the 2015 Pier of the Year. And for information about the Henry Blogg Museum, click here. As man...
alianoutbody.blogspot.com
AlienOutbody: Gressenhall Rural Life Musuem
http://alianoutbody.blogspot.com/2015/09/gressenhall-rural-life-musuem.html
Wednesday, 2 September 2015. Gressenhall Rural Life Musuem. Stitching completed by an inmate in the workhouse. The Workhouse Laundry- Matrons washing machine. Sampler sent home from the front by a soldier ww2. Hope everyone had a nice August :). Subscribe to: Post Comments (Atom). View my complete profile. Gressenhall Rural Life Musuem. Common Relationship Problems And What To Do About Them! No relationship is pla. The Chronic illness Diary Of A Young Adult. My 7 year ME/CFS diagnosis anniversary. 2016: ...
alianoutbody.blogspot.com
AlienOutbody: Obsessions...
http://alianoutbody.blogspot.com/2015/07/obsessions.html
Friday, 24 July 2015. Some of my current obsessions. This is probably one of my favourite chocolate bars; especially Happy Cow and it's recently been on offer at Morrisons half price a bar. I only let myself have it when it is on offer or I'd be the size of a house! I'm currently on my last bar *sobsob* and when thats finished I shall have to wait until it goes back on offer! I get my drops yarns from Wool Warehouse and they often have sales on drops yarns throughout the year, so the already reasonably p...
jesscfs.blogspot.com
Jess' ME/CFS blog: Return to Uni following medical leave
http://jesscfs.blogspot.com/2014/10/return-to-uni-following-medical-leave.html
Saturday, 4 October 2014. Return to Uni following medical leave. Returning to University following medical leave has been a roller-coaster of emotions. Being chronically ill is beyond hard. You are exhausted and it's exhausting- there is so much hassle trying to sort everything and juggle things. And then the more you think about it all, the more exhausted you get, and the more difficult it becomes. Ugh. Thankfully, my group have been lovely, and I'm lucky in that I have support workers, which means I al...
jesscfs.blogspot.com
Jess' ME/CFS blog: Trigeminal Neuralgia/facial pain Awareness
http://jesscfs.blogspot.com/2014/10/trigeminal-neuralgiafacial-pain.html
Tuesday, 7 October 2014. Trigeminal Neuralgia/facial pain Awareness. Today, October 7th, is the awareness day for trigeminal neuralgia and other facial pain conditions. I have had facial pain for several years now and I don't think I can begin to explain how severe the pain can get at times. I get very sharp, electric-shock-like pains, particularly in my temples and along my jaw, in addition to vice-like aches in my forehead and cheeks. My dose of gabapentin was adjusted up and down a few times. High...
jesscfs.blogspot.com
Jess' ME/CFS blog: December 2014
http://jesscfs.blogspot.com/2014_12_01_archive.html
Friday, 19 December 2014. I've been meaning to update for a while, but just haven't got round to it, so sorry about that! Things are going fairly well really. I'm actually on the train to home-home from uni-home at the moment. Excited to have made it through my first ever uni term major-relapse-free! I've barely missed anything (*proud face*), but admittedly I have been part-time this term. I'm even more excited by the prospect of time-off though. It's certainly needed! I've also started melatonin since ...
SOCIAL ENGAGEMENT